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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@kenkim 

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kenkim

The waiting game until your next infusion

I was diagnosed with PPMS in August 2022 after a series of MRI's My MS Neurologist prescribed Ocrevus, my first infusion was December 2022 split in to 2 appointments 2 weeks apart... 2-3 hours sitting with a needle in my arm went better than I thought, symptoms were tiredness and dizzyness while walking to the car to go home Now, it is every 6 months....
4
@JMon
@JMon
 

I was confirmed with MS in Sept but my nuero refused to label it just yet as he wanted to review things a little longer . Also started Ocrevus in Dec . He said he wanted to start strong . Seeing him again on Valentines day so going to push him again cause from what I am reading I think I am PPMS too .

1
@kenkim
@kenkim
 

Please fight for your diagnoses! The more you know the better