@ellamom 

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ellamom

Long post - stay with me! Clear Brain MRI but spine lesions? #nowwhat

October 2021: Covid March 2022: Lost my dad (he was 58, died on duty three weeks before retirement, he was my person……) June 2022: Dengue Fever July 2022: ear infection, vertigo, got a metabolic panel done and vitamin D was low. Got prescribed 50 thousand units once a week for eight weeks. Started having facial sensitivity in my left side (burning) August 2022: continued sensitivity - went to the doctor and was told it was a reaction to my vitamin September 2022: pins and needles arms and legs. October 2022: facial sensitivity, pins and needles or arms and legs, muscle spasms/ twitching (not sure what to call it) in random areas: my arms, legs, finger, side of my head (next to my eye). I also started having pain on my left eye (outer corner) feeling as it was dry and sore (went to eye doctor: vision is fine. Scalp crawling sensation on the right side of my head. Laying down I get these Chills from my lower back all the way to my toes and I feel cold easily! These chills will happen in waves of two of three and subside for a while. Nothing when I bend my head down. Then woke up one day with my legs very sore and stiff (calves) right behind the knees. As if I have had a bad calf cramp and stayed sore for a couple of days. I did massages, stretching, moving and magnesium… Blood metabolic panel (shows vitamin d as insufficient) everything else is fine. CT Scan of my head: CLEAR MRI of my brain: CLEAR. *but* they onde it does a lesion/trauma on my cervical spine and are ordering a CT scan (shouldn’t it be an mri?) The nurse didn’t know what to tell me on the phone so not very helpful…. Can this be something not MS? My symptoms (from sensory, nerve to brain fog) made me believe the doctor when I went to the er and they told me about MS…. With a clear brain scan…. I got all the permanent and term life insurance in place last month, all I think about it my three year old boy. He is my whole life. My husband is my soulmate (he is gone for military for 15 months. I work full time, am a mother and in grad school) we just moved across the country and we zero family support here… What else could this be? Or is it MS and just not in my mri and I’ll be in limbo waiting for the day I’ll relapse and just show on my brain scan so it can start to be treated? I supposed my spine exams will tell me more. But is that a thing? To have spine lesions and no brain lesions ? Pour some light. This year has been rough and I just want people to entertain my notes or speculate. Rant/confession/let our session over. Thanks for staying with me til here.
@jamoranto

Ohh @ellamom In my experience I had the same with my MRI’s and my spinal chord exam. It was confirmed that my MS has moved to secondary progressive MS now. I was diagnosed with RRMS in late 2008.

@DANDERSON

I am sorry you are dealing with this, I also lost my dad a few years back so I know how much it can hurt. From what I’ve seen in the MS community, people in the private sector sometimes fight for years to actually get a diagnosis. I was active duty military with very clear lesions all over my brain so it only took a matter of days… But either way I would pretend as if I do have MS, if I were you, just to start changing your diet and lifestyle to fight against it. I take medication and try to go at it in natural ways such as diet and exercise, but I know there are thousands of people out there who either don’t trust the medication or who can’t afford it etc. and choose to use purely natural ways of slowing progression. So, I know this doesn’t necessarily get you any closer to your answer whether or not you do you have MS, but I think in the meantime you could try to find some relief by addressing things in your life that have been linked to MS progression such as poor diet, cigarette smoking, lack of sleep etc. I think that even if it turns out to be something else, making those changes can only have a positive affect on things overall. Mostly, it just may allow you to regain just a little bit of control around the situation until you get more answers. I hope this helps! Very Respectfully, Dan