Quality of life
Hey folks, 30 year old, RRMS (warrior) here and new to Shift.ms - I was diagnosed in September 2023 and am still waiting for treatment (Ocrevus). I have had a really tough time with symptoms for a good year now, and have had to recently resign from my secondary teaching role at a school I loved. I have an almost 2 year old daughter and I feel as though I will be missing so much at present and in the future with her should I have to continue this life as I am. I can barely walk and struggle to take care of myself, let alone my family. I have an amazing husband and friendship groups that support me but I cannot see a life like this forever. Please can someone tell me that it gets better when you start treatment? Nurses and consultants aren’t doing a great job of reassurance. I’m usually such a positive, active and physical person, the MS has literally changed everything. Sending love to you all x x
I remember that feeling. Out of the gates my neurologist told me I’ll probably end up in a wheel chair. Not the silver lining I was hoping for. I also have a child and had to stop working, putting myself first did not come naturally. I’m not as active or have the energy that I once had and constantly adjusting to a new normal. But meds, diet, and exercise help keep me stable so I can be present in my family’s life and in mine. Hope can go a long way, and I’m sorry you haven’t received the responses that you would have liked and probably needed. Keep being the warrior, you will find your footing!
@CeCeYYC I second this. It takes awhile, but when I figured out the right diet, meds, and time on Ocrevus (a good year and a half) I did stabilize from my bad relapse. it gets better. At least it did for me. Good luck fellow teacher! 🧡