@Louisbear 

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Louisbear

Any myelin repair news?

Hello all, I've just been notified that the myelin-repair clinical trial I've been part of for years is about to come to an end. As of next Monday, no more drugs for me (and yes, i've definitely been on active not control for the past ~1 year). This feels like it's been working. I had neuropathy, that's gone. I used to fall regularly, haven't fallen for ages; my eyesight was deteriorating quite badly, that's stabilisedHello all, I've just been notified that the myelin-repair clinical trial I've been part of for years is about to come to an end. As of next Monday, no more drugs for me (and yes, i've definitely been on active not control for the past ~1 year). This feels like it's been working. I had neuropathy, that's gone. I used to fall regularly, haven't fallen for ages; my eyesight was deteriorating quite badly, that's stablised (and I've been told by the ppl running the study that the data backs that eyesight vibe up). Does anyone know of anything else on the horizon for repair meds? I'm very keen to be as active as I can about this rather than just waiting for the next piece of me to stop fundtioning.
@Runningonempty

Don’t know of anything new on horizon @nute shared some info about pons but just wanted to say thanks - your an inspiration and a go getter for getting involved in myelin repair only developments in this area is what I’m secretly invested my hope in - so just wanted to share my encouragement thanks and best wishes fingers crossed your improvements continue- all the best & take care of you!!!!

@jamoranto

Woah @Louisbear that’s amazing

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