Newly Diagnosed
Hi, this is extremely daunting for me but I am hoping doing this will provide some support!
I am 21 and have recently been diagnosed with relapsing remitting ms, I am currently going through the stage of choosing the best treatment but am finding it incredibly overwhelming! I have been offered what feels like everything under the sun including taking part in the StarMs trial.
Any support/ your own experience stories and what you are currently taking would be so helpful😊
Thank you xx
Hi! I am so sorry to hear about your diagnosis. I know how daunting it can be. I was diagnosed two years ago and I have been taking Rituxan. I live in Norway and that is the drug they are using for most who have MS. They find it to be highly effective and it does seem to be working for me. I haven't had any more lesions since my diagnosis. I have also been doing what I can to get to the root problem. I have changed my diet, exercise daily, and meditate every day.
@LilyH I was in exactly your position 10 years ago. Newly diagnosed, loads of information being thrown at me, and the offer of a clinical trial. I said yes to the clinical trial and ended up on a much better drug. The Star MS trial is using some of the best disease modifying drugs on offer. Personally, I would say yes to the trial, you will be closely monitored, have access to a healthcare team, as well as your MS team at your local hospital. In fact, I'm on my second clinical trial, because of the reasons I've just stated above. And if I need any of my symptoms sorting out, I tend to get seen to quicker. If you are interested in the HSCT, which is part of the Star MS trial, please do your research. It works for some, but not for all.