@JasFromTas 

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JasFromTas

Relapse #6

Bugger bugger bugger and other non written words. 6 in 2 years despite Tysabri and Gilenya. And the let up will happen when...? So back in hospital. Having day #3 of methylpred today after having some major balance problems and ataxia during the week (started falling on Wednesday). Filling cranky as my neuro physio was about to lift my workplace restrictions (after she was going to talk to my neuro, and I'd seem him in about a month). But now I'm back at bloody square one where I'm furniture crawling to the bathroom (a good 4 meters away), and looking at more bloody rehab and time off work (have a total of 3.46 hrs of sick leave due to having bladder Botox 3 weeks ago and took sick leave then for anaesthetic (works brilliantly, BTW, thank goodness for small mercies). Told my neuro team to shove their walking frame, I'm 28 for goodness sake. So now won't be seen by physio till Tuesday (being labeled as non-compliant, me thinks). Grrraaaahhhh! So feeling lost and need a hug. :-( Jas
@Stumbler

Oh, Jas, there seems to be no let up for you. Are you aware of anything that may have caused this latest problem, e.g. overdoing it or similar? Anything that you can avoid in the future. I'm sending hugs half way round the world to you. But, don't reject walkers. They are great for getting your legs working again when a relapse leaves you unsteady. You don't have to go outside with it.

@melissag

I'm sorry to hear you are having such a tough time Jas! I hope they're able to find some meds that help calm the frequency of relapse you are having, 6 in 2 years, that must be horrible :( Hope things start to turn around for you soon!