So, we met with the main man.... not starting MS treatment as my lesions are currently stable. One of my current meds has been increased and I am being referred to a neuro psychologist. Next MRI will be in August. The thing I liked about today was the fact that he listened to me, he understood and explained things in a clear way. He explained why my thoughts/memory are struggling a little - the way he explained it just made sense. Having things explained in a clear way was exactly what I needed. Apparently I am normal!! Seeing my brain on a screen is amazing. He showed us the images from my last mri in comparison to my recent one. Seeing my lesions is strange but the visual aspect really helps me to understand. I will admit, today, I kind of hoped he would say "we got it wrong - you don't have PPMS". I told him that and explained that as I am not getting any treatment it's hard to accept that I actually have PPMS, I told him I hoped he would just say "we will get you more physio and be fine". Naive?? I know but for some reason I was clinging to that. He understood my thinking but again confirmed I definitely do have PPMS. He confirmed that as soon as new lesions start appearing I will go straight onto the good stuff, Ocrevus. He confirmed that currently is the only treatment available for PPMS. So - no treatment, meds increased, neuro psychology will start, next MRI is in August. Also signed up to what they call the Rowling Clinic where I will be kept up to date and maybe even involved in future trials. Let's see what happens next eh.......