Tysabri
I had my third infusion of Tysabri today and I’m noticing the side effects getting worse than before. Is anyone else on Tysabri? What are your experiences? I was also curious on when they started to feel the full effects of it. Did it take 6 months to a year until you felt the positive change?
I’ve been on Tysabri for about 3 years total. (2 years on, then took 2 years off all DMT ….now been back on Tysabri for several months. ). In short, I can’t say that I have ever felt a notable improvement, but my understanding is that Tysabri is one of the stronger drugs to help prevent and slow any further MS lesions/damage. So that is the positive for me. But I have heard other patients say that they do literally get almost immediate relief after their IV infusions. So that confuses me. I guess we are all quite different. On the positive side, I have never noticed any negative side effect surrounding infusion time. I wish you some relief of your MS symptoms! Given that you just started, I would give it a good 6 months before trying to assess how you feel overall.
What are the side effects that you are noticing? Tysabri isn't a cure but should prevent future relapses