@Helenkf01 

Last reply

Helenkf01

Fed up in limbo

Need some advice. I am living in limbo land and have been for just over a year. Not seen a neurologist since January. Had a few test and just been told everything is reassuring as inflammation not changed since last MRI. Phoned a few times as symptoms changed. I now have to walk with a stick sometimes. When I phoned last time they got an MS Nurse to call and have a chat a few times. (She was very helpful). I went to my GP as I just needed someone to look me over and maybe send an email to neurologist to get seen a bit quicker. She tested me for B12 (which was one of the first things I was tested for and came back fine) the tests showed my platelets are slightly high. She also referred me to ENT as I have constant buzzing in my ears and every time I swallow I feel there is something in my throat. I read that these things can be symptoms of MS but the ENT says they are not symptoms of MS. I am now being treated for heart burn and being sent to see if I need a hearing aid even though I can hear. I have also to stress less. Are they symptoms of MS? I feel like I am going mad. I just feel nobody’s listening to me and maybe it’s all in my head it’s just stress causing everything. Sorry for long post just really fed up.
@Robs79

Hey Helen, if you fancy a chat to go through things please feel free to message me as happy to help and support you. Rob x

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@Clary

Being past from pillar to post sounds super frustrating. MS Charities in the UK can be super helpful during diagnosis. For a diagnosis in the UK neurologists use the MacDonald criteria. Or is it McDonald criteria 🤷‍♀️. I am not sure 🤔. Anyway! What did the MS nurse think? I hope you can navigate the system. All the best.

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