I think Ocrevus is making my MS worse? Am I over reacting?!
…. I am always hearing about this miracle Ocrevus, but I have this awful feeling it is making my MS worse. My walk is so much worse, I have numbness rising in both legs and has spread to my left leg when only my right used to be affected. I’m in constant, endless pain that I want when on Tecfuderea. I work full time and I have to walk a lot in my job and my days generally. I have said this to my MS nurse & she has told the consultant but they are so reluctant to listen / consider changing my medication. I’m due to get my 5th infusion soon and I’m so scared to take it because every time I do, it gets worse but these last few months have been beyond bad. I never want to complain or be talking about my MS lots but recently I just can’t even pretend it’s OK. What are most people’s experience of Ocrevus? Am I over reacting? Or do other people have this kind of symptom deterioration with Ocrevus?! Sorry for long post, but I just want to be able to think, “ok, this is manageable, even if it’s painful.” I don’t mind pain and I am super good at having it all the time but Ocrevus seems to be making it all much worse. I have RRMS and at my last MRI (about 10 months ago), there were no new lesions. Thank you for reading!
@HOTMiS , Hi I'm 55 from Wokingham and started Ocrevus in April, I have SPMS and Ocrevus is weird because all you hear is "Well, it's the best thing for MS" So, I keep plodding on, left, right, left, right.. I don't see an improvement as Ocrevus will HELP STOP NEW attacks, it won't go and repair damage already done. I'm sorry, but all the research I've done has only pointed in the positive direction and also my neurologist (who is Great) said it would be the best thing for me.. I just put bad days down as MS being the grumbling TWAT that it is. I just "Try" to stay positive and be kind. I hope your day is good.. Martin✌️
@HOTMiS Ocrevus is my 4th treatment and I’m doing really well on it 😁😅. it’s my 6th full dose in October time it has really helped me thank goodness 😅. It’s helps people and sometimes it doesn’t help for all people we are all different. If u keep going with it it might improve for you 🤞 if it doesn’t say you want to change treatment.