Rrms.no treatment
Hi
Does anyone have RRMS but not on any treatment. I've been diagnosed over 25 years and have had three relapses and more lesions. But have not been recommended to go on any treatment.
I don't know if that's positive or not as I have read mixed ideas regarding preventative medication.
Just looking for some thoughts.
Feel quite alone as I haven't told anyone I have it and don't particularly present as I do, but hitting the big 40 has had me over thinking and feeling /he need to connect.
Hey, the best thing to do is speak to your neurology/ms team. I've only been diagnosed since June last year and I've had four relapses so I'm getting on treatment as soon as possible. Your treatments are often based on your activity levels in the UK. The treatments can have quite nasty side effects so if you've had only three relapses in 25years maybe they think that it's not worth treatment just yet but who knows. Definitely speak to your MS team if you're concerned.
I too have been ignored. I did start off on treatment but when it didn't work well for me and I had to stop it,since then I have been ignored. I was diagnosed in 2004. I have told my Ms nurse that I feel left out, so next month after a long wait I am having what is called a stand alone MRI. So I hope something will get done. I am 65 now.🙄