@Caelan 

Last reply

Caelan

Career difficulties

Hello and good morning/afternoon everyone. I'm new to the group, but wanted to chat a bit if that's ok. I tend to ramble so I apologize if this is lengthy. I'll put *** next to my question if anyone wants to skip past. (I won't be offended, Im adhd and my way of explaining things can be a lengthy process ☺) I have yet to have an official diagnosis of MS so far, but it's in my specialist's differential. One thing I do have confirmed so far is PoTs (Postural Orthostatic Tachycardia Syndrome) so I feel very fatigued, and physically overwhelmed easily. I left a physically demanding job in May 21, due to stress but got covid near the end of the year 2021. (Which my doctor thinks aggravated an immune disorder) It really knocked me off my feet and for a few months I was immobile. I worked as cashier for a year at a farmers market, which I loved but I found the standing aggravated my PoTs. For me, moving around is a bit easier cause I assume my blood volume stays steady. I've gone back to warehouse work which was great at the start because I'm able to sit on the stools in the back if I feel winded. But recently I feel like I'm deconditioning? (Can't lift product bins, having trouble pushing carts, using pallet jack, walking etc) I was worried if I had covid again but thankfully my test was negative. Unfortunately I've started to be honest with how I'm feeling to my employer (I once worked with them for 3 years in the past and felt we got along well so figured it would be ok) but I get sort of an off feeling whenever I mention I need to leave a bit early or having problems. (I always make sure my tasks are finished beforehand) **** Question time**** I'm just wondering, if this is an Ms flare or a similar immune flare; how long does this last for everyone? Or what seems to help for those not on medicine yet or currently. I understand it varies from person to person. For example, my mother has Von Willebrand and gets a lot of joint pain and flare upset that can last a few weeks to a month. The only other time I've felt like this was during covid, and a bit afterwards and it took what seemed like forever to feel well enough to function again. 😔 I'm mostly worried about losing this job as my current employer has given me fulltime hours and next month I can get benefits if I pull through. But I also feel like I won't feel better, as I never feel like I'm at the same level again once I recover. I don't really have any other skills for work, so I wouldn't even know what to do for work to be honest. I'm sorry for the lengthy post, I appreciate those who took the time to read it; thank you. 🖤
@AncsamolnardoTe

Hi there For me, they not diagnosed MS yet, and looks like in the future is well. I not agree to any medication, I using my way, and I stable, so week ago the doctor said,, we not meet again,, My way is working, why I change!?!?? Maybe is not working to everybody , but everybody chose the different treatment

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