Anxiety and researching MS
Hi everyone -
I am very easily anxious and am struggling with knowing how much to research. I want to know more but at the same time I regret filling my head with worries I shouldn’t be controlled over now. I was diagnosed in January and recovering from a big relapse affecting my walking and balance. I’m petrified of things getting worse by having another relapse. I am 26 so I am also thinking about when I would start to have children if I am lucky enough, but again have heard so much about relapses after birth and don’t know what to think about it all! Don’t really know what I’m asking… just airing my thoughts 😅 I guess what I’m trying to ask is how much do you research yourself/want to know?
Hi there. I'm newly diagnosed this week and so wanted to research as much as possible as for me the unknown was the scariest. However I can see myself looking things up less, as everyone's case is different and it seems that we only have control over treatment options and lifestyle choices. As my neurologist confirmed, it's just "pot luck" so I'm now trying just to crack on with life and deal with issues if and when they come up. Of course it's completely personal to you but if it's making you anxious looking things up, try to limit the time you spend doing that to not get stuck in a loop.
Really good advice from Adam, I'm the same! I have already totally fear mongered myself so will stop too. As its written everywhere, no 2 people are the same so I don't think it does us much good and I will just stick with the MS trust website and the MS team. I got massively confused over diets for example and was really unsure of which diet to follow/change but I spoke to a nurse who totally calmed me down. I am looking forward to a proper appointment with them when the time comes. I'd stick with professional advice from your team as google is totally full of crap the majority of the time! ;p I also find more people like to voice negative and horror stories which doesn't help the anxiety.. xx