Newbie
Hi, I am new to this. Never thought I'd feel the need to speak to others but boy am I scared. I don't know where to start. I have primary progressive but from the date of diagnosis, I take no disease modifying drugs. My choice and I'm happy I did but over the last week or so, I am struggling to walk and I know it's progressing. I am scared as to what will come next.
@Ang49 Hi, being scared is something that affects us all at sometimes. The words PRIMARY and PROGRESSIVE don't help. Your journey will be your own and happen at your own pace. When things change for you it will be difficult to accept them at first but persevere and try to. You still have a long journey ahead of you that you can enjoy and make the most of. When you have specific issues affecting you come here to ask questions of how others have coped or found workarounds for them that you could try. I do many things that I wouldn't have done without having MS. Stay strong, stay in touch and look forward in life. Mick.
Hello and welcome! You're right, MS progression is so scary because you have no idea what's happening next and how you'll deal with it. Stay strong, hang in there, and speak to us whenever you need x