So… I was diagnosed a little over 3 years over following a bout of ON. There had been other weird symptoms previously, but not enough for me or my GP to make any link to MS. Here’s what happened next:
Had MRI which showed new lesions (albeit v small ones).
Switched to Gilenya.
Lymphocytes dropped to 0.15.
Taken off Gilenya.
Waited 4 months for Neuro appointment / any contact from the hospital.
Saw new consultant. Had to recap medical history.
In the meantime, had paperwork to renew medical driving licence.
Had another MRI.
Results back today. Medical licence declined pending further investigation into my ‘eye condition’. I can’t fill in the form because I don’t have an eye condition…
MRI described as ‘very good’ repeatedly by Neuro.
Dmt declined because lymphocytes are still low (0.7). Neuro says even if lymphocytes were normal, they would probably hold out on it because the side effects don’t outweigh the benefits…
Lumbar puncture ordered. When I asked why, new Neuro said: ‘We think it’s MS but we just want to rule anything else out.’
What is she saying? I was misdiagnosed and have been pumping my body with all sorts of drugs for years? I’ve managed to do the impossible and cure myself?
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