Today I had an appointment with my consultant for diagnostic test results and discussion about treatment. His recommendation was to go for a higher-potency DMT as the current body of evidence supports that approach, but that I need to weigh up the side effects and long-term risks associated with this. Either one of those or Tecfidera, as he described it as the stronger of the lower/mid potency DMTs. When I asked about the low-potency drugs like interferons, he explained that as they have been around a while and they are maybe a bit dated compared to the newer/stronger drugs, he would lean towards the stronger drugs.
My question to you guys is whether your consultants gave you similar or different info? And I wondered why people are on low-potency drugs like interferons, if they aren’t as promising or effective as the newer drugs? Has anyone else started with a high-potency drug as their first treatment? When I first started reading about treatments, I rather naively made the assumption that one might begin with the milder drugs and then escalate as needed?
He has given me a narrowed down list of his recommendations for me to weigh up and choose from: Tecfidera, Lemtrada, Fingolimod, Tysabri and Ocrevus as part of a clinical trial. If anyone has any strong opinions one way or another, or experiences of these, I’d be really keen to hear from you, and how you arrived at your decisions? There’s tonnes of factors/variables that right now I just can’t make clear sense of, to make a decision!
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