I am new to this site and wondered how many people with PPMS used it? Really interested to hear other people’s experience of PPMS. I was diagnosed three year ago after investigations into what was then a mild gait/drop foot problem. Over the past 18 months I have experienced significantly greater walking/balance difficulties and quite a lot of hip pain and stiffness in my upper leg/thigh. Quite a lot of confusion among the medics over what was causing the pain – was it the MS or a separate back problem. Great though the NHS is it is very poor and joining things up. I have been left, after an MRI showing no evidence of MS progression and inconclusive treatment on my back, with increased walking difficulties and constant pain with no real idea about what is causing it. As i said interested to hear other experiences.
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