Last reply 3 months ago
Ocrevus now approved by NICE for PPMS

https://www.mstrust.org.uk/news/good-news-nice-approves-ocrevus-ocrelizumab-primary-progressive-ms

Today’s announcement.

The MS Trust is delighted that Ocrevus (ocrelizumab) has been approved by NICE for NHS treatment of early, inflammatory primary progressive MS.

NICE has approved Ocrevus for people with primary progressive MS if they:

have had symptoms of primary progressive MS for 15 years or less
and
are able to walk 20 metres or more, with or without walking aids (up to EDSS 6.5)
and
have evidence of MS activity on MRI scans.

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cathie16
3 months ago

As someone who has just been diagnosed with PPMS I’m rather encouraged by this. Any views on its effectiveness would be appreciated!


vixen
3 months ago

Hi @cathie16, scroll down for earlier posts today, especially from @dominics


dutchy
3 months ago

When I asked my consultant last year about Ocrevus, he was rather dismissive — but that it is style. He said that the US research did not show that Ocrevus had a significant effect on the progression of PPMS. One of the issues here is, that PPMS may take 20 years to progress, and the drug company can’t wait to do such long-term trials.

In my view, the announcement of NICE goes against the scepticism. I’ve already contacted my MS specialist to find out whether I would be considered. This news has given me such a boost, and I really hope that I will “qualify” and get this drug. It won’t undo the damage already done by PPMS — but it will slow down further progression. What a gift that will be after all the worry.


dominics
3 months ago

@cathie16 – If you search for Ocreves on the Shift.ms search facility it will bring up every post tagged with the topic. Quite nifty when you are looking for something.


dominics
3 months ago

Ocrevus – even. Fat fingers, apols.


cathie16
3 months ago

fab @dominic and @dutchy and @vixen thank you!

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