Last reply 7 months ago
New, but old to MS

Have had MS for over 30 years . I was in the original copaxone 251 patient double blind study beginning in 1993. The medicine has been good to me…with 30 years of little MS problems.

On 10/22, I had a cardiac ablation to “fix” my hear palpitations. On 10/27, my health fell apart with horrendous migraine like headaches, fatigue, anxiety and other typical MS symptoms. After 2 ER visits in 2 different hospitals and several visits with my PCP with no results, I am back with my MS neurologist. So, yes, an old MS diagnosis, but a new MS journey.

I am now reading all I can on the latest in MS research, going to a chiropractor, reiki specialist.

Hope to learn more from others and find comfort as we all travel this path.


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7 months ago

I am sorry you are having to deal with all of these new problems from your MS. I hope you feel better soon. Potter

7 months ago

Hello @rene_landry, wow, you must have seen some changes in the MS landscape with your veteran outlook! I hope your recent health issues stabilise. Please can you tell me how, or if, the reiki works for you? Have a nice Sunday

7 months ago

Hi @rene_landry I’m one of the old codgers. Have had the beast for 26 years, was also on an original trial but this time for Avonex (Beta-Inferon) 24 years ago. 4 yrs of trial, then was on it officially (when NICE finally said yes) for another 19 years until it stopped working. Got changed to Tecfidera a year ago, usally have 2/3 relapses a year, nothing for the last year so from that point of view is working, but have steadily been going downbank for the last 18mths, hence the change. But they did tell me 25 years ago that rrms would become spms in 10-15 years and it took 23 so not complaining. Glad you’ve found us, wealth of info and experience here and we’re all quite safe, apart from a few men who make very bad jokes occasionally mentioning no namesπŸ₯ŠπŸ˜œπŸ‘πŸ˜

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