Last reply 6 months ago
Hi, I'm new

I somehow ended up here watching viral Facebook videos? Never seen this place before. Not in England, but Birmingham, Alabama. Diagnosed April 2012. Started wheelchair June 2017.

Not much to say. The wheelchair is not the problem. Because Trigeminal Neuralgia is do bad I cannot go in the bright sun. The optic nerves and trigeminal nerve flare. Plus, extreme heat intolerance.

Before MS, I was an avid canoer and kayaker, hiker, trail runner, swimmer, gym lover. After MS dx I trained for Paratriathlon and competed for 1 year. Then, even tho I worked so hard, my legs stopped walking. The first replapse my legs went out, solumedrol saved me, but over 2 years it was coming back. I took lunch at work one day, stood up, strong. Body was still strong from triathlon, but my legs were controlled by my brain. My brain was not able to make my legs walk. To keep my job, I had to take a chair. Very embarassing to an athlete… now, I have been teaching myself less motivation, and I watch TV a lot.

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6 months ago

Hi and welcome,
I’m sorry you are going through so much at the moment. I had Trigeminal Neuralgia earlier this year and it was the worst pain I ever had. My GP prescribed Tegretol and that calmed it down immediately. It’s hard to be motivated when you have pain like this.

Ann Marie

6 months ago

Hi @tresie-ozley,

I’ve not been on long myself, but have found the support from other members to be tremendous. There always seems to be someone around who can relate to others stories / conditions / frustrations / anguish.

Welcome, and I hope you find it as beneficial on here as I have.

Best Wishes.

6 months ago

@tresie_ozley, hi & welcome to our jolly band of MSers. I am also in a wh/ch and I don’t go out much which is ok by me. I have a lovely small house, a live in carer and a cute as a button rescue dog and a garden I can get to down ramps. I wasn’t sporty like you but was always on the go. I don’t have the neuralgia you mention but I’ve read other posts on here of people who have and it sounds really awful. I have to get up now….. have a good day. xx

6 months ago

@tresie_ozley – more details on your profile please xx

6 months ago

hope all is well I had Trigeminal Neuralgia and yes it is awful, I had a procedure and got off the usual pain killers now it has gone into my tongue and I too have had to start Tegretol, yes it has worked but my balance has gone, the joys of MS. The link is my mothly blog, read from the start as I lived in the States for 9 years, I update it monthly, good luck

6 months ago

Hi and welcome. Shift.MS is a great place for advice, better than some of the FB pages.

6 months ago

I am new myself, today in fact!
Just been reading your post and very glad to see that you are keeping strong too 🙂

6 months ago

Well… I tried signing in with Facebook via my email, 406. Did not work. Now I tried with Google account.

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