I somehow ended up here watching viral Facebook videos? Never seen this place before. Not in England, but Birmingham, Alabama. Diagnosed April 2012. Started wheelchair June 2017.
Not much to say. The wheelchair is not the problem. Because Trigeminal Neuralgia is do bad I cannot go in the bright sun. The optic nerves and trigeminal nerve flare. Plus, extreme heat intolerance.
Before MS, I was an avid canoer and kayaker, hiker, trail runner, swimmer, gym lover. After MS dx I trained for Paratriathlon and competed for 1 year. Then, even tho I worked so hard, my legs stopped walking. The first replapse my legs went out, solumedrol saved me, but over 2 years it was coming back. I took lunch at work one day, stood up, strong. Body was still strong from triathlon, but my legs were controlled by my brain. My brain was not able to make my legs walk. To keep my job, I had to take a chair. Very embarassing to an athlete… now, I have been teaching myself less motivation, and I watch TV a lot.
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