I’d dealt with hospitals mainly as a visitor until my diagnosis last month. I feel bad for complaining that results aren’t being communicated back to me so that we can move on with my next steps. I know our NHS is under a lot of stress and unfortunately so am I!
I’ve been told that if my results came back clear then I’d be fine to choose a DMT. This fits fine with me as I’m keen to zap things as early as we can and I’ve been doing my reading so that I choose what’s right for me.
But the team have had my results for a week now and still haven’t contacted me to let me know the results and what it means for me going forward. Hopefully that’s a good sign, right?
It’s just all a bit vague and the waiting is killing me because I just want to stay organised and prevent further relapses. I really feel bad for moaning but all I see and hear is how important it is to be prompt and catch things early and treat things ASAP, and the hospital are the ones that have the power to move me along to treatment stages and are just sitting with the results?!
So sorry for ranting but it’s really getting in my nerves! Every time I phone I get asked to phone back at a time when a more capable person will be on shift and I still get no further.
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