Shift.ms

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Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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23 Jul 2025 09:37

Morning, I had a bad fall on Monday night,not bad enough for a&e. My leg has been either giving way or shooting out straight, any advice welcome. Thanks in advance.

First posted on the Shift.ms app

22 Jul 2025 21:08Last reply 23 Jul 2025 06:58

Hey everyone 👋 I’m Dylan, a 38-year-old guy living with MS out here in Saskatchewan. I run a legal weed dispensary (yes, I’m that guy), and I use dark humor, sarcasm, and a whole lot of cannabis to get through the weirdness that is life with MS.I figured it was time to find a space with people who get it the fatigue, the brain fog, the “oh cool, my leg’s just doing its own thing now” moments. I’m just here to connect, share some laughs (the darker the better), and not feel like I’m the only one in the snow belt dealing with this.If you're in or around Saskatchewanor even if you're not say hi. I don’t bite. Unless it's a bad MS day and my jaw spasms. (Kidding. Mostly.)Looking forward to getting to know some fellow weirdos on this ride

Saskatoon, Canada

First posted on the Shift.ms app

17 Jul 2025 16:10Last reply 22 Jul 2025 19:35

I'm not sure how 6 years went by

It's been a long time since I posted here but I got a notification about getting fitter and since that's exactly what I'm doing right now I logged in for a read. After Lemtrada in 2015/16 I've been on Ocrevus for 5 years now, diagnosed for over a decade, I'm also 10 years no new activity on my MRI's...

Reading, UK

21 Jun 2025 20:33Last reply 22 Jul 2025 19:35

I've just been diagnosed even though I've been attending the MS clinic for a few years. My neurologist has suggested I research dmt on the ms website and look at the various treatments. Any advice on DMT?

First posted on the Shift.ms app

20 Jul 2025 02:33 EditedLast reply 21 Jul 2025 01:20

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app

@Melanatedmsmom

20 Jul 2025 16:35Last reply 21 Jul 2025 01:16

Does anyone know where I can get a diagnosis card? We are traveling soon and I think it would help with getting around

First posted on the Shift.ms app

20 Jul 2025 21:13 EditedLast reply 20 Jul 2025 23:08

For those that lost most/all of their vision due to ON did you wear a patch over the affected eye? And if so did it help?

First posted on the Shift.ms app

20 Jul 2025 02:43Last reply 20 Jul 2025 06:56

I was diagnosed in January 2025- i had numbness and tingling of my lower body. When i was in the hospital the MRI showed lesions on my brain and in my thoracic. I had one round of ocrevus in March. Just had a 6 month follow up MRI which stated lesions were still on my brain but have resolved in my thoracic with no signs of demylenating disease as it reads on MyChart. I don’t see my neuro until Aug7 but i was wondering if anyone has had similar where the lesion is gone now and no signs of disease in my thoracic

First posted on the Shift.ms app

16 Jul 2025 15:55

Hello everybody, I am Jimmy. I just found this group and a little bit about me. Both biological parents were diagnosed with MS mom in her 20s. My dad and his 40s I have learned to watch for signs and symptoms, but I put them off thinking it can’t be happening to me it skips a generation And then I found out my dad‘s little sister was diagnosed and a cousin that is only two years older than me was diagnosed and I decided my wife being a nurse I might as well not put it off anymore because my body was getting worse. I have lost Feeling in both my feet. My limbs go numb for no reason I cannot stand or sit for long periods of time my bladder does not function the way it should. My balance isn’t the greatest anymore. I am pretty much going through all the same problems. My parents went through And I know I should listen to the neurologist and do everything but it just feels like he already knows he just wants to make sure that it isn’t a disease that mimics MS I know I just have to be patient and do everything but my body is in so much pain sometimes and I can’t sleep But then when I am able to walk around, we have sand spurs here in Florida. I can walk across my yard and my dog can feel them more than I can when they get stuck to the bottom of our feet and when I tell doctors and neurologist that both of my parents Suffered MS, their eyes light up like I’m assigning it to experiment and tell me that it is rare to hear that the neurologist I have studies MS and he says this was the first time he has ever heard of both biological parents having MS. He even showed me studies And it’s either a grandma or a grandpa Paw or a mom or a dad and then I was told I have a 12 to 15% more likely chance of having MS at first I was frustrated and then I was just depressed and then I realized if my parents could deal with it for so long and keep their positive attitude even though their bodies were breaking down And rejecting the things they wanted to do. I have decided that I will listen to the doctors but with everything else going on with me some of the medicines for it I can’t even take because of heart condition conditions or colitis. I appreciate being accepted to the group and I just wish there was something like this for my parents back in the 80s and 90s

First posted on the Shift.ms app

16 Jul 2025 04:09Last reply 16 Jul 2025 04:30

So…had a swallow study done today. It showed Oropharyngeal dysphagia. It explains some things I’ve been experiencing. Neurologist and SLP want to see me. I’m 59 years old in a few weeks and have PPMS. Thoughts? Cause for concern or not a big deal?

First posted on the Shift.ms app