#we - Shift.ms

@Randyadams

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Just got home at 2:30. Was a busy day.does anyone know how i can get a wheelchair accessible van donated to me. Im need to use my power wheelchair to get too dr appointments. Its getting to hard to use my stand up walker for my PPMS. Please help. I weigh 218lbs and im 6ft 1inch and my power wheelchair weighs about 300lbs. Its a stage 3 rehab power wheelchair.

Jurupa Valley, United States

First posted on the Shift.ms app

8

@Glamluvs5H8MS

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True story really. I am going to stay with my oldest son, here home my other son is overwhelmed, he doesn’t feel comfortable being too far from me🥹 his other siblings have minimized what he seeing maximally! We talk and I do understand his feelings, they are valid! So I’m me meeting my 2 granddaughters who are both under 4 so I am excited yet I have zero income😫 my flight and thing were gifted to me. I’m am grateful for that. I wanted to get to meet my granddaughters before anything else happens. I have hired counsel to assist me in obtaining Disability, I apply a few times and was denied. I can’t even afford my medication. Not looking for sympathy, I guess, just wanted to be more clear, I ABSOLUTELY hate MS and what it’s done to my confidence, yeah I don’t trust myself,& I before this all I was actually looking forward to turning 50! Yeah made it to 50 but I don’t like how I feel and how unsure I am now about the things I was MOST confident about doing, not so much these days and it makes me ANGRY cuz I didn’t plan this nor have the resources to live with this confidently. Praying for a steady body to keep doing what it HAS been doing for 49 years!! Health care is NOT caring these days and I can only say, timing has been my lack for some time now. I digress have a awesome MS’n day everyone. 💜🫶🏾🤟🏾💪🏾🤞🏾✌🏾

Fort Worth, United States

First posted on the Shift.ms app

6

@paddymac999

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I feel very heavy headed. Im not sure if its brain fog. I was diagnosed with PPMS about two years ago and im still trying to find stuff out. Anyway for the last couple weeks I feel heavy headed and find it hard to concentrate and want to lie down all the time. Does anyone else ever feel like this and will it pass or is it going to be permanent

First posted on the Shift.ms app

3

@Plumbduff

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Hi need some advice, walking feels strange and uncomfortable,legs feel numb,heavy and weak at times (like they'll give way) I need to be up and walking for the next few weeks so I'd appreciate it if anyone has any advice or tips. Thanks

First posted on the Shift.ms app

5

@tusagni

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Wearable tracker use

Who wears a tracker for things like fatigue and such? Visible? Apple Watch app? Hume? Garmin? Fitbit? What device and programs work best for MS? I’m so sick of listening to the Visibie commercial and knowing it costs a stupid amount a month subscription but it sound super cool for chronic illness sp...

First posted on the Shift.ms app

17

@St1gzy

Wearables and MS: The Tiny Coach That Lives on Your Wrist

Twenty years ago your doctor asked, "How are you feeling?" Now your watch answers before you do. 😂 Wearable devices aren't a cure for MS, but they're brilliant for spotting patterns. Fatigue, poor sleep, stress, low activity... sometimes your watch notices you're having "one of those days" before...

First posted on the Shift.ms app

@Nephthys

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A yone else struggle to eat? By the time im done cooking im to exhausted to eat anything went from 128 to 109lbs

First posted on the Shift.ms app

9

@mrwarlockdark

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Weird on my phone

I am finding it increasingly harder to follow most of the threads when they get big on this phone lol anyone else have an issue? Or any tips please Thanks

First posted on the Shift.ms app

1

@gratefulme

EditedLast reply

New to Shift MS! West Yorkshire, UK

Hello! I’m new to the app. My MS nurse suggested it as I’d said I could just really do with knowing a few people who understand. I have a lovely Instagram community but they’re all over the world and it would be bloody lovely to have a brew with someone local to Bradford/Leeds in West Yorkshire?

First posted on the Shift.ms app

3

@bless1karl

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Welp...

1 year in and still don't know much about this disease...but I know I have it...I'm scared to do my research :/

First posted on the Shift.ms app

14

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