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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@Biteme71 

Last reply

Biteme71

Ramification of torticollis nonsense and what happens when you have side effects with botox . After my latest round of Botox that I have every 3 months to deal with the torticollis new nonsense I now am choking every time I try to swallow something or God forbid eat something. This is not the diet plan I was looking for 🤦 I called the MS center for some advice on swallowing or rather navigating the new nonsense and then cold a different neurologist to try to get a second opinion. Of course I can't be seen until freaking August. No I don't want to go to the emergency room it's not an emergency simply going to the emergency room cost more money than my God damn mortgage. Luckily if I eat small bites of tiny things I'm able to choke down some food and cream of wheat works but damn it not cool. On the other hand my husband made a really cool attachment to a scooter we have so that we can hook my Walker onto it so that when we go on vacation I can take the walker with me at the beach when we drive around. It's the little things I'm such a lucky woman to have such a fabulous husband 🤩 and yes attitude is everything do what you can how you can when you can and everything else can f*** off 🤣

First posted on the Shift.ms app
3

@MarcBerg828 

Last reply

MarcBerg828

Hello. So just got diagnosed with MS after a 2 week stay in the hospital at the end of April. And the last 2 weeks on both arms in my elbow area at pretty numb to the touch and my left arm hurts when I try and pick something up. Not sure if it's related or not. Have to set up a appointment with neurology after I get a referral from my PCP which I'm getting on Thursday afternoon!!!

First posted on the Shift.ms app
4

@Leah89 

EditedLast reply

Leah89

Hi, I got diagnosed in January and started on medication after a very long wait about a month ago, unfortunately I had a very severe reaction to copaxone....I need to start another treatment however it's limited what I can take due to the fact me and my partner are trying for another baby just wondering what anyone else is or has taken whilst trying to conceive? My ms nurse keeps trying to push the infusion but due to the severe reaction I had after only 4 jabs I don't fancy 6 months worth at a time going into my body. Thanks for reading

First posted on the Shift.ms app
11

@Sarahplus3 

Last reply

Sarahplus3

Hey guys does anybody know good vitamins for rrms I’m on a dmt and other drugs but I’m trying to be as healthy as I can

First posted on the Shift.ms app
8

@JenNM 

Last reply

JenNM

Hi there! I know numbness is an MS thing. I’m trying to determine if what I’ve am experiencing comes from MS or something that needs a chiropractor. The numbness only happens when I’m walking around for more than twenty minutes. I’d love to hear your thoughts. BTW it just in my upper left leg.

First posted on the Shift.ms app
2

@vjm028 

EditedLast reply

vjm028

Hi everyone , new to this , just joined today. First diagnosed in 2008, managed well until about 4 years ago. Most recently this awful disease is trying to take my legs and I just need people to talk to who understand how soul destroying it can be to be honest. Talking to friends and family helps but they don’t understand , no matter how much they try to 😥.

First posted on the Shift.ms app
19

@TheRRMSLife 

TheRRMSLife

Loce when you try and oeder a nice treat, q the money has Come out but No Sign of the expected products.

First posted on the Shift.ms app

@Yasmin91x 

Last reply

Yasmin91x

Still can’t empty my bowels 5 days now I’m trying everything to let me go nothing is working ahhh fed up

First posted on the Shift.ms app
29

@katannya 

Edited

katannya

I learned recently that I had an abnormal MRI 7 years ago,with abnormalities the radiologist stated were consistent with MS, but the neurologist generated a false report that stated that my MRI was normal. I also have been diagnosed with POTS, EDS, and am in the process of trying to get a formal diagnosis for MCAS. I live in area where the bafiatric pressure is always changing. I was wondering if living somewhere with a lowere bariatric pressure had been helpful.for anyone? Or if living somewhere where there is less variables in the bariatric pressure? Ive noticed improvement with lower bariatric pressure or even just even bariatric pressure. . Idk..has anyone here moved to a climate that works for them?

First posted on the Shift.ms app

@MarnieV 

Last reply

MarnieV

I am always in pain. Back,legs,shoulders,feet etc. I'm always taking Advil or tylenol but they don't help very much. Any advice about what I can try for pain

First posted on the Shift.ms app
33
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