#try - Shift.ms

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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@JenniDawn

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Hey everyone. I am new here. I was just diagnosed with MS after they found three lesions in my MRIs—one in my brain stem last April and two more on my brain about two months ago. Following a lumbar puncture two weeks ago, my neurologist confirmed the diagnosis.I have my first appointment with a neuroimmunologist MS specialist this coming Friday. I’m trying to put together a list of questions, but honestly, I’m an emotional mess and feeling very overwhelmed. I have a small list started, but I would love some suggestions on what I should prioritize asking as I start this journey. Please and thank you!😊

First posted on the Shift.ms app

@Nana7

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I struggle trusting doctors and all my friends have backed away. I feel like if I try and talk about what I'm feeling or why I can't go somewhere.

First posted on the Shift.ms app

@Alex122

Totally resonated ‘ I get you’ I’ve been going through similar - few loses over the last 2 yrs - I’m so very sorry for your loss- take care of your ALWAYS & remember be patient with yourself however you feel whenever you feeling it is okAnd I very wise person told me to practice stuff with S’s they really help here’s a few to get you started -Sex/relationships/connectionsService - acts of kindness/gratittude/thanks/ helping others etcExerSize ( yep the big S he’s funny too)Singing ( if like me you make dogs & children cry when you do you can do it while alone to music ie sing a long or humming works too)Socialing - try not to withdraw or isolate being around good people is important especially those who get it - grief sadly is a well trodden path and no one is exempt but there’s comfort in not being in it aloneHope this helps in some tiny way 💪🍀🫂🧡🤞😊

First posted on the Shift.ms app

@Jpooh

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Does anyone else experience pain and throbbing in legs at night? It's only at night when I'm lying down and/ or ready for bed. It's different from my aches and pains and stiffness during the day. Was diagnosed in mid November so I'm still trying to navigate my way through all this nonsense 🙃😉🧠🫘( I call my lesions brain beans 🤷‍♀️😂)

First posted on the Shift.ms app

@jpaige1975

Hi Everyone 👋🏾 if anyone has experienced slight fevers and fell down always remember "lift assist" when calling 911. They then know to send the correct paramedics that it's not a life/death situation after answering their questions regarding bleeding, being unconscious, etc.. over the last 7-8 years this has happened to me and a high temperature is only 99-100 so not extremely high but it still took a toll on me. That's why I now have 2 sets of canes and walkers. And definitely do not have a friend, family member, etc to try to catch you while falling because dead weight is almost impossible to prevent and they can hurt themselves while trying to help

Lincoln, United States

First posted on the Shift.ms app

@Tomtom52

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Guess I’ll try something new

Will get up tomorrow morning and try to cut the grass. Wish me luck. !

First posted on the Shift.ms app

@Susiebear

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Welcome 🤗 I was Dx’d July 12, 2002 then (39 yrs young) my MRI said I had over a dozen lesions on my brain … now 62 , Blessed I laid it on the altar … No New or Active lesions since I’ve had fatigue for sure, heat sensitivity, mood swings, depression, R. Foot drop, my Neurologist just retired last yr Oct. he’s been with me 23yrs, I have fallen down, I have walking sticks 👩‍🦯now and try to slow down … I take Aubagio for treatment (1 pill qx day)easy to take… Take care and give MS to God , it’s not a test it’s a Testimony Have a Good Attitude 🤗

First posted on the Shift.ms app

@Newtotheteam

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Still trying to navigate things. Having a bad day. Worst in awhile and I feel like I haven’t been symptom free for weeks. Thinking about the emergency room. Any thoughts?

First posted on the Shift.ms app

@jamoranto

EditedLast reply

Try to look at it with a positive vibe.

https://youtu.be/RjBpB467M1o?si=rsNDBWtJ6Tij4pej

@chopperfirekat

Edited

Dx in January of 2008. So little over 18 years with MS. I'm currently on oral meds and ocrevus infusion every 5'months. I'm SPMS in stage of MS. I worked 15 years with MS. April of 2023 had a big flare that almost put me in a wheelchair. I still walking but use walker or cane. Every day is a struggle yet I push forward. I'm 52 years of age. I feel bad I have to depend on my wife for a lot because she has her own health issues. We be together 28 years this coming October. We help each other. I try to stay active I build custom bike and restore vintage bikes as well. I even build them for people with disabilities. If any one like to join my bike club here the Facebook name Lay'em Low Bike Club. I'm the president of the bike club which is worldwide. Thanks for reading my post and I'm excited to be here. Everyone have a great day.

First posted on the Shift.ms app

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