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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@calm_life521 

Last reply

calm_life521

I'm new here, trying to start making those connections with MSers so I can get ahead of having an idea what this whole MS thing is about and how I can of course deal with, the changes, adjustments, treatment etc. My grandmother had MS before she passed and seeing myself today, I kind of think I just might have MS, not completely sure yet because what I think might be the symptoms could just be something normal I'm dealing with at the time, it goes away and sometimes I get to feel those twitches, fatigue, brain fog and sleepless nights a few times. Open to learning about people who have been on this journey and how their everyday living is handled it…. Look forward to meeting great minds and kind people

First posted on the Shift.ms app
7

@fayerene 

EditedLast reply

fayerene

I have issue with the sensation of a lump in my throat, constantly trying to clear my throat. Anyone have this?

First posted on the Shift.ms app
3

@JoshuaOct2024 

Last reply

JoshuaOct2024

I am trying to understand how people with PPMS get treated with something other Ocrevus.I would also like to know how it's covered, insurance,out of pocket etc. Please comment so I have answers. Thank you

First posted on the Shift.ms app
1

@Missy1973 

Last reply

Missy1973

Hi, I’m taking Tecfidera since 2018 and have had heartburn for a few years. Had a recent endoscopy and diagnosed with gastritis and evidence of peptic ulcer. Trying to figure if it’s a result of Tecfidera?

First posted on the Shift.ms app
3

@JoshuaOct2024 

Last reply

JoshuaOct2024

Yesterday I received my first shot administered of Ocrevis. Normally get a infusion not sure how I feel about it. Made me feel weirder than usual. Been at the hospital for 10hours in the ED. I really feel like coming here is a joke,don't know what else to do. Then I fell down trying to get up to give my vitals.🤷‍♂️

First posted on the Shift.ms app
1

@Ashlees0777 

Last reply

Ashlees0777

After sharing about my health this week on facebook, I’ve realized how overwhelming it can be to open up.I know people mean well, but the amount of unsolicited advice has honestly been a lot to take in. Suggestions like “try this” or “do that” come from a good place, but when you’re already exhausted and hurting, it can feel overwhelming instead of helpful.Please know I am working closely with my medical team and doing everything I can to take care of myself. Right now, what I need most is support, understanding, and encouragement more than advice.Thank you to those who have checked in and shown kindness. It truly means more than you know.

First posted on the Shift.ms app
13

@HotMessJ 

Last reply

HotMessJ

Neuropathic itch is trying to end me

Neuropathic itch can absolutely get in the bin. My numb hand/arm flare has come back worse the last couple of days and the itching is INSANE. Not normal itch. Not “oh I’ll just scratch it”. More like my nervous system is malfunctioning and trying to make me peel my own skin off for sport. It’s all ...
First posted on the Shift.ms app
4

@samuel1919 

Last reply

samuel1919

I have 4 years with MS for me is complicated walk long distances because I fell too much pressure in my legs muscles im not doing im just tryn to do something for that but my depression never give me the actitud to lear how live with this condition

First posted on the Shift.ms app
1

@lvnmyns 

Last reply

lvnmyns

One more question… How do you handle the moments when you start crying for no reason at all. It’s embarrassing, and I try to hide it by taking deep breaths.

First posted on the Shift.ms app
10

@Teresan 

Last reply

Teresan

Anyone else have that standing on a boat feeling when you try to walk?

First posted on the Shift.ms app
6
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