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Just wondering if anyone has tried the Tao Patch that I keep seeing? Suppose to use your body’s own energy to help restore balance, ease pain and reduce MS symptoms? They are expensive but last for 2.5 years so it really breaks down to $26/month. It’s a 90 day trial so it seems legit. I’d rather...

I had my annual check up with my consultant 2 hours ago at RUH Bath. Here is a brain dump of our discussion, while it's fresh in my mind, in case it helps anyone else with RRMS/SPMS who takes a T Cell based DMD: - Lymp count was 1.3 and right where they want it. - The very slow annual increase in...

I am helping to shape a guide called "Alternative Treatments and Complementary Medicine – Looking for evidence and knowing the risks" for this excellent organisation https://senseaboutscience.org. I was contacted by them via the work I do for the MS Society. Does anyone have personal experience of ...

I went to get tested to see if I could participate in the metformin clinical trial at cambridge university but (un)fortunately I wasn't able to because I didn't have enough damage on my Optic nerves. Now question; what would happen if I took metformin without being prescribed it? Surely there must ...

I was wondering if anyone here has started on HRT in their mid 40s and found it helped with MS symptoms at all, along with other things (please feel free to share 'other things' if you are comfortable as I have read HRT can help with issues such as loss of libido and with pain and dryness you-know-w...

Hey everyone, I've been abroad for a while taking some time out for myself hence I haven't been active on this platform. The reason I'm reaching out is to let everyone know that I have come across Dr michael c levin on YouTube and it appears that he's developed a new drug that could really help anyo...

Anyone being bombarded with the benefits of NMN for MS? I’m really confused, as some studies show that taking this to produce more NAD has a positive effect on myelin repair and protection and other studies suggest it can trigger axon degeneration. I had been taking it (bit silly as research and cli...

UK residents only unfortunately. This is an opportunity with the National Institute for Health Research, to review patient facing materials for a trial in multiple sclerosis, to make it more patient friendly, and improve trial uptake and outcomes. You will be renumerated for your time and insights....

Hi team, I hope everyone is well today! 🤞🏻 I'm so excited and just had to share; I've just finished the 4 week trial of Fampyra and had my assessed walk earlier. I HALVED the time it took me to walk 25ft in the initial assessment, and haven't stopped crying since! 😭🤣 I really needed this toda...