Looking for
something specific?

I was wondering if anyone here has started on HRT in their mid 40s and found it helped with MS symptoms at all, along with other things (please feel free to share 'other things' if you are comfortable as I have read HRT can help with issues such as loss of libido and with pain and dryness you-know-w...

Hey everyone, I've been abroad for a while taking some time out for myself hence I haven't been active on this platform. The reason I'm reaching out is to let everyone know that I have come across Dr michael c levin on YouTube and it appears that he's developed a new drug that could really help anyo...

Anyone being bombarded with the benefits of NMN for MS? I’m really confused, as some studies show that taking this to produce more NAD has a positive effect on myelin repair and protection and other studies suggest it can trigger axon degeneration. I had been taking it (bit silly as research and cli...

UK residents only unfortunately. This is an opportunity with the National Institute for Health Research, to review patient facing materials for a trial in multiple sclerosis, to make it more patient friendly, and improve trial uptake and outcomes. You will be renumerated for your time and insights....

Hi team, I hope everyone is well today! 🤞🏻 I'm so excited and just had to share; I've just finished the 4 week trial of Fampyra and had my assessed walk earlier. I HALVED the time it took me to walk 25ft in the initial assessment, and haven't stopped crying since! 😭🤣 I really needed this toda...

AI stands to make some massive impacts in MS, often in levelling up the standard and consistency of the care we receive. I am on the board of a UK based trial examining the icobrainms tool in looking at MRI. This article is about a similar wider reaching project in Europe. The TL;DR version is as...

*LONG WINDED POST IM AFRAID * It's been 7 years since i was diagnosed with Fibromyalgia. I spent the first few months after that diagnosis on such strong painkillers, I was almost constantly nauseous and I struggled to get out of bed most days. I became depressed, because i felt like i couldnt do a...

So yesterday I got told that I ain't one in a million (yes I know I thought it was sarcasm to lol). But I was told I was 1 in at least 1200!! I am all registered onto the MS trial Octopus. Bloods were taken, discussions were had. My first MRI is next week. The team were lovely. There was a def...

I havnt myself, although I’ve never been asked. I’m not sure what my response would be. That brings me to my next question. Are there any “game changer” close to if not a cure drugs in trials at the moment ?