@Offered a place in a CAR-T trial – anyone have experience? on Shift.ms

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@sasha999

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Offered a place in a CAR-T trial – anyone have experience?

So… Ocrevus didn’t work for me, Lemtrada was amazing but I can’t have any more, and now I’ve been offered a spot in a CAR-T trial. I know it’s still pretty experimental, but I’ve been reading about the KYV-101 stuff and it sounds promising. Has anyone here actually done it or know someone who has? What’s it really like – the hospital stay, how you feel after, any side effects? And did it help? Would love to hear the good, bad, and “wish I’d known” stories! ❤️

First posted on the Shift.ms app

@Cat4trouble

I am currently on a CAR-TTRIAL in London. Day 6 post cell transfer so early days. I am keeping a long on insta to share the story so far. When do you start or still deciding?

2 Nov 2025 13:48