I have a small nerve sheath tumor on my cervical spine. I was just diagnosed with both, so still figuring how life with both is going to look/how treatments for one will impact the other. Does anyone else have the MS/nerve sheath tumor combo? How has it impacted you if so?
I’m so excited to be giving my foot drop brace even though they said it won’t be back for two weeks . This around the time I’m taking New MS drops hopefully, I won’t need It.
Hi gang,
A fairly new symptom I’ve added to my collection is uncontrollable shakes and bounces…started on Baclofen for this but can’t really see that it’s doing much to be honest. What are people doing to manage this? Any information/ guidance will be greatly appreciated.
Zainab
Hi I am new to this app and wanted to get some feedback, I have to get my first spinal tap this week and wanted to get some advice on what to expect and how to best prepare. Thank you in advance any help would be much appreciated
Hey, has anyone experienced a really early period (or early ‘withdrawal bleed, if on HRT) after the first round of an anti-CD20 therapy?
I’m bleeding a whole week early, and this is unusual because my cycle is always fairly regular. The only thing that’s been different in my life is the infusion of...
Is anyone here in the same situation? My MS nurse says I have to switch from Ocrevus (on which I’m stable - touch wood) to Briumvi. No clinical reason - just says that the NHS now demands patients have Briumvi instead. Has anyone managed to push back on this if they didn’t want to swap? I don’t want...