#not - Shift.ms

@Michellejohn35

2 Jun 2025 18:17

ecently had my MRI results and (as I kinda suspected after a rough few months) had new lesions.I'm currently on Plegridy (moved from Tecfidera as I'm JCV positive and my lymphocytes lowered a lot). Tecfidera worked ok for me, but Plegridy obviously hasn't been as effective. Due to the hard few months I've really isolated myself from people (some I'm unsure even how to reach out to again now) and live alone alone some of the time when my four children are at their mum's. Positive news is, they've mentioned Ocrevus and Kesimpta, which are obviously higher efficacy treatments. Could I ask for any advice people have around these DMTs, please? If you've seen me ask on Facebook or Instagram, then feel free to ignore and not repeat yourself.

First posted on the Shift.ms app

@KennyG

26 May 2025 07:19

Hi everybody...I have a doubt...are you feeling that your symptoms get back one week before your next shot of medicine???I was with my doctor last week and explained that he said that is not possible because my body is already full of medicine, what I feel is psychological!! Anyone feeling like that?

First posted on the Shift.ms app

@SamAsher

23 May 2025 22:43Last reply 26 May 2025 03:46

Anyone not have MS that bad?

I know no one with MS aside from myself, so I don’t know what’s normal or not. I have MS and some parts of it suck but I never really think about it and it doesn’t stop me from doing anything, or at least because I never think about it I never associate anything with my MS. Is this just me? I was ...

First posted on the Shift.ms app

28

@cboogy45

23 May 2025 12:27Last reply 24 May 2025 16:51

What medications are you guys taking. I have not taken meds for 10 years but now they want me to start again

First posted on the Shift.ms app

30

@Brookaroo

28 Mar 2025 17:48 EditedLast reply 23 May 2025 00:28

Diagnosis not through MRI?

I now have three doctors (including my MS neurologist’s opinion) that I may have MS. My brain and cervical spine MRI appear normal but my symptoms and physical assessments show MS symptoms and all doctors say CNS difficulties. Experienced some mild symptoms for years but in July my right arm went se...

First posted on the Shift.ms app

14

@TJack

21 May 2025 20:01 EditedLast reply 22 May 2025 03:18

So, I am a scuba diver and probably have over 100 dives under my belt but I haven’t been since my diagnosis. My hubbie and I would like to go again in probably december. Anybody know if MS is something that has to be disclosed? Can they not allow you to dive? I’m good under water, the only thing I’ve found I need help with is getting out, just taking off my fins and bcd/tank and I’m good. Any experience or advice out there? I can’t snowboard any more, don’t want to lose this too!

First posted on the Shift.ms app

3

@Yasmin91x

17 May 2025 19:07Last reply 19 May 2025 02:16

Still can’t empty my bowels 5 days now I’m trying everything to let me go nothing is working ahhh fed up

First posted on the Shift.ms app

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@Nickson

18 May 2025 18:05Last reply 19 May 2025 00:54

Anyone notice change in weather affects MS ?

Hi, today habe notices symptoms Pins and needles in face , watery eye headache and fatigue . Eyes hurt so blinds are down as hurting my eyes . ( feels like a relapse goimg to happen ) Weather hasnt been So great hear today no sunshine and cold / jumper weather . Has this affected anyone with sudden ...

First posted on the Shift.ms app

21

@katannya

18 May 2025 16:34 Edited