Shift.ms

@Carlos

11 May 2025 13:57

No

First posted on the Shift.ms app

@MeMilam

24 Jul 2025 11:05Last reply 25 Jul 2025 00:57

Good morning my MS peeps. First time here. I was wondering how often do you switch DMTs? I was diagnosed in 2019 but it all start in 2004. I am on my 4th different medication. Started with Aubagio, then Kisempta, Ocrevus now Zeposia. Seems like they work for about a year then, I have to change. Anyone else like that? .

San Angelo, United States

First posted on the Shift.ms app

10

@JimmyHankes

24 Jul 2025 16:30 EditedLast reply 24 Jul 2025 18:37

Im 52, was diagnosed in 2019, had a Harley, everything I could ask for, then I was diagnosed. Everything changed, now I can’t do most things. Walking included, but each day goes on!!

First posted on the Shift.ms app

3

@bigdill306

22 Jul 2025 21:08Last reply 24 Jul 2025 17:14

Hey everyone 👋 I’m Dylan, a 38-year-old guy living with MS out here in Saskatchewan. I run a legal weed dispensary (yes, I’m that guy), and I use dark humor, sarcasm, and a whole lot of cannabis to get through the weirdness that is life with MS.I figured it was time to find a space with people who get it the fatigue, the brain fog, the “oh cool, my leg’s just doing its own thing now” moments. I’m just here to connect, share some laughs (the darker the better), and not feel like I’m the only one in the snow belt dealing with this.If you're in or around Saskatchewanor even if you're not say hi. I don’t bite. Unless it's a bad MS day and my jaw spasms. (Kidding. Mostly.)Looking forward to getting to know some fellow weirdos on this ride

Saskatoon, Canada

First posted on the Shift.ms app

54

@morbiddelusion

19 Jun 2025 06:34Last reply 24 Jul 2025 12:35

I'm so tired of feeling like I'm not good enough, worthless, alone. I'm afraid that I'll be alone for the rest of my life. Ik that if I'm alone when my mom passes that I won't be able to stop my suicidal ideation from taking over. I have borderline personality disorder and my worst fear is being alone not having anyone to help me walk through the pain that my mom passing will bring. This has been on my mind so much lately. I am honestly afraid of what will happen... I fight with my mental health the most. Besides the fatigue my depression, my borderline personality disorder and suicidal ideation is something I have always had a hard time with. Any feedback would be great.

Ocklawaha, United States

First posted on the Shift.ms app

8

@softsweater

24 Jul 2025 12:12

I get internal tremors and it sucks I've been getting them mostly in the summer time for a long time and finally now I talked to the doctor to get an MRI does anybody on this chat line experience internal tremors

First posted on the Shift.ms app

@cazz174

23 Jul 2025 09:37Last reply 23 Jul 2025 17:34

Morning, I had a bad fall on Monday night,not bad enough for a&e. My leg has been either giving way or shooting out straight, any advice welcome. Thanks in advance.

First posted on the Shift.ms app

6

@TracyD

17 Jul 2025 16:10Last reply 22 Jul 2025 19:35

I'm not sure how 6 years went by

It's been a long time since I posted here but I got a notification about getting fitter and since that's exactly what I'm doing right now I logged in for a read. After Lemtrada in 2015/16 I've been on Ocrevus for 5 years now, diagnosed for over a decade, I'm also 10 years no new activity on my MRI's...

Reading, UK

10

@Jpetridish

20 Jul 2025 02:33 EditedLast reply 21 Jul 2025 01:20

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app

9

@BillySmith

19 Jan 2023 14:36 EditedLast reply 20 Jul 2025 16:28

Not diagnosed but got questions?

Hey everyone 💚 I wanted to reach out to people who have ‘I might have MS’ on their profile. I remember how overwhelming it was to have a million questions. I want to remind you that you're not alone while you’re waiting. If you have any questions or concerns, drop them in the comments below and I'l...

Birmingham, United Kingdom

52

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