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I need to have some Blood Samples taken before my next dose of Ocrevus on Nov 1st so, today a District Nurse visited me at home to take some blood and to change the bandages on my lower legs due to Ulcers and Blisters, or Cellulitus as it's known. When it came to taking the blood, it was completely ...

Way back when, in the days before the world changed. Before MS and COVID and all the bad things I've gone through in the last 4 years, I used to be quite active in the music scene as a photographer (not particularly good but I had fun and people supported me). I had friends whom I'd hang out with re...

Hey folks. My name is Steve and I'm about two weeks into my MS journey. I recently had an MRI which leads my doctor to believe I have it. "Demylenation" is a word that has been bandied about. I have my first appointment with the MS Clinic in June. I'm still done, but not out. I I want to live in a...

Hey folks! My name is Steve and my MS journey started almost 2 weeks ago. My head MRI showed significant demylenation and now I have an appointment booked with the MS Clinic. I'm sad, nervous and excited, but I know I'm not going through this alone.

Hey folks. My name is Steve and I'm about two weeks into my MS journey. I recently had an MRI which leads my doctor to believe I have it. "Demylenation" is a word that has been bandied about. I have my first appointment with the MS Clinic in June. I'm still done, but not out. I I want to live in a...

But, I was feeling it yesterday. I took a hot shower instead. Paying for it all night and dark thirty this morning.

Making the right decision for me: Understanding your options “It was through looking at other people that I realised there was a more holistic approach”. Preach it Roxy! 🙌 In this episode, check out Roxy, Dom and Claire talking about how to root out good MS resources, contextualise information an...

Hi everyone, I’ve been on Tysabri since January, however I’ve had a new lesion in my recent scan and need to move to another treatment. I have rapidly evolving severe rrms. Has anyone had Tysabri and it’s not worked? If so what did you choose to switch to?

Hi everyone, happy Sunday! I’m having to switch from Tysabri after 8 month because although I’ve not had any new symptoms, I’ve had a new tiny lesion. I’m now going to be having Kesimpta! I had my last Tysabri on Tuesday and I’m now in a 6 week wash out period while my funding goes through for Kes...

If ever I am out and walking, I try to go at a comfortable steady pace. Sometimes, my feet start to slack and I have to make sure I pick them up properly before I start to trip or basically just lose my footing. I get the feeling that passers by or followers are watching me and that can stick with m...