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Good morning! Yesterday I had my MRI results that showed no lesions, this of course is amazing news and I am very thankful. My neurologist said for now we are ruling out m.s. While I am massively relieved about this it leaves me more worried about the symptoms am I feeling and wondering if I am act...

New video online! Today I talk about my story... about the things MS has taken away from me and how I adapted to being chronically ill and STILL doing what I love. Yes, its motivation wednesday 😄 Check it out 🧡 https://youtu.be/clIF5jOVu0c

I had a really bad day yesterday with fatigue and brain fog. Everything was a battle, but I still had to go to work and just get through it somehow. I got home, my husband asked how my day was and I told him how I had really struggled. He said "oh I get that too sometimes". Like...no. I love my ...

I was diagnosed in December of 2022 after a flare left me suddenly unable to walk for a week. Since then I've been recovering and taking it pretty easy when it comes to doing regular people things. But I'm moving to a new city next week to go back to school (A decision I made when it became clear I...

To begin, I had a craniotomy in 2014 to remove a benign brain tumor from the left frontal lobe that was causing vision loss, the worst migraines I’ve ever had, and many other issues. Since 2020, I’ve noticed random nerve pain in other places on my body outside of my head. Random hot spots that feel ...

To begin, I had a craniotomy in 2014 to remove a benign brain tumor from the left frontal lobe that was causing vision loss, the worst migraines I’ve ever had, and many other issues. Since 2020, I’ve noticed random nerve pain in other places on my body outside of my head. Random hot spots that feel ...

Hello all. New to the site. Just thought I'd tell you alittle bit about myself. You have all, I'm sure, had similar stories. 2 years ago I started having extreme heart palpitations to the point that I thought I was having a heart attack and crazy fatigue. My pulse went down to 36 bpm and oxygen 87. ...

Hi there! I'd like to ask those MSers, diagnosed before Covid, how did you manage fears of viral infections? My partner is even more worried than I am about going to places without a mask. How did you cope before when you had sneezing people around you? What about, post-covid? How are you handling i...

How do you cope with everyone having their own family and growing up to have a life Im turning mid 40s abd most of my time taken up trying to cope and fight or survive having ms Its just not fair and so intoxicating How do you deal with the fact i feel like a grocery item left on a shelf forgotten...

I had optic neuritis in left eye back in April of 2020, I was in between insurance coverage and couldn't get treatment so it lasted 5 long weeks. I have slight damage to that optic nerve. Well, I had two MRIs after that showing no lesions. My neurologist told me to wait to see if I developed any new...

I have recently been diagnosed with mild MS having had two separate episodes in the last two years but the first of the 3 being 12 years ago. I have been offered to start medication but I am a bit apprehensive as I am symptom free atm and feel that I should wait to see if there will be another episo...

Hello! I just wanted to get some opinions about what should be the due process after an MRI in the NHS. Obviously this changes from trust to trust. I have moved hospital and my specialist has written to me to say that there was no report made after my last scan at another hospital. At this hospit...

What treatment is there for spms

I was diagnosed in December 2022 after optic neuritis for the third time in 17 years (July 2005, December 2021 and April 2022). I have never had any other symptoms other than things that could be very easily be due to getting older. Since my MRI in July 2022 until my MRI in December 2022, I have thr...

What's the difference between never having to work again versus never being able to work again? During out #makeworkworkcampaign in London we asked members of the public What would you do today if you couldn't work tomorrow? Let us know in the comments below https://www.youtube.com/watch?v=zvsgVpm8...

Hey everyone 💚 I wanted to reach out to people who have ‘I might have MS’ on their profile. I remember how overwhelming it was to have a million questions. I want to remind you that you're not alone while you’re waiting. If you have any questions or concerns, drop them in the comments below and I'l...

Wow. Ok. Not everyone has to be a Christian. I don’t like ANY organization of religion with good reason. And it’s ok. I’m not a bad or evil person. Promise. 🧙‍♀️🧿✨

Second week of return to work now, and barely been able to do anything, yet the pressure is on now to build up. This morning’s effort of staring at a computer screen and attending a Teams meeting has caused an almighty exacerbation. Worrying not going to get easier. Anyone else going through this...

Sorry no offense but I don’t believe in the same gawd as you Leave me alone with that shit

Hello i just found out about your group and I have decided to join.after eight years with ms sleeping, 😴😴😴 it decided to make an appearance. So we will see how it goes from here🤪🤪🤪