I'm awaiting a buddy, and a diagnosis.
Since a head injury my FND Functional Neurology Disorder has struck out with tendon pain in all joints and mobility when I'm fatigued I walk with a shuffle.
I'm under North Wales Head Injury Team as my Neurology consultant is about to retire in Shrewsbury, an...
Hi, I was diagnosed with MS from my MRI scan but I’m waiting for my first consultant appointment, which is tomorrow. My worst and main symptom has been dizziness, worsening since Oct last year. I’m a bit nervous about tomorrow’s appointment, not sure what to expect etc. I’d like to be diagnosed my M...
Hello I’ve only been prescribed gaba the past few years. The doctor has previously seemed to not be willing to try anything else. The issue is the gaba does nothing for my pain but makes my brain useless and I get so sleepy. So in a ways it makes quality of life worse. I am reading that low dose opi...
Hello I’ve only been prescribed gaba the past few years. The doctor has previously seemed to not be willing to try anything else. The issue is the gabs does nothing for my pain but makes my brain useless and I get so sleepy. So in a ways it makes quality of life worse. I am reading that low dose opi...
Hello
I have recently been thinking about switching from Tysabri to Ocrevus due to a moderate JVC level. (I’m nervous about it continuing to increase)
What are your experiences of switching?
I feel more of less normal on Tysabri. Is it the same for Ocrevus?
What are your thoughts on the side eff...
Hi, I have been off DMTs since July of last year. Recently my lab work came back revealing low lymphocytes(they were normal in January) and I had a positive B clonality panel IGH (this lab was mistakenly ordered by my doctor). I’m a little nervous regarding these results, especially the IGH panel. M...
I have been on Natilizumab for 7 years now with no side effects and only one relapse 3 years ago. It worked and I only went every 6weeks so felt little distruption to my day-day life. The day has come where I have tested positive for the JCV virus and have to come off. I am about to start the on Ocr...
Hi all! Anyone struggling with restless leg syndrome after his/her first infusion with tysabri accompanied with cortisone infusion as well?? It's sooo nervous-breaking!
Hi all. I thought I would post. I’ve been stuck in limbo land since a flurry of neuro symptoms starting most noteable in sept 2022. My symptoms started to improve by December 2022. My mri in March 2023 showed multiple small lesions to the periventricular and subcortical areas. All inactive at the ti...