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@Jimmy369VT 

16 Jul 2025 15:55

Jimmy369VT

Hello everybody, I am Jimmy. I just found this group and a little bit about me. Both biological parents were diagnosed with MS mom in her 20s. My dad and his 40s I have learned to watch for signs and symptoms, but I put them off thinking it can’t be happening to me it skips a generation And then I found out my dad‘s little sister was diagnosed and a cousin that is only two years older than me was diagnosed and I decided my wife being a nurse I might as well not put it off anymore because my body was getting worse. I have lost Feeling in both my feet. My limbs go numb for no reason I cannot stand or sit for long periods of time my bladder does not function the way it should. My balance isn’t the greatest anymore. I am pretty much going through all the same problems. My parents went through And I know I should listen to the neurologist and do everything but it just feels like he already knows he just wants to make sure that it isn’t a disease that mimics MS I know I just have to be patient and do everything but my body is in so much pain sometimes and I can’t sleep But then when I am able to walk around, we have sand spurs here in Florida. I can walk across my yard and my dog can feel them more than I can when they get stuck to the bottom of our feet and when I tell doctors and neurologist that both of my parents Suffered MS, their eyes light up like I’m assigning it to experiment and tell me that it is rare to hear that the neurologist I have studies MS and he says this was the first time he has ever heard of both biological parents having MS. He even showed me studies And it’s either a grandma or a grandpa Paw or a mom or a dad and then I was told I have a 12 to 15% more likely chance of having MS at first I was frustrated and then I was just depressed and then I realized if my parents could deal with it for so long and keep their positive attitude even though their bodies were breaking down And rejecting the things they wanted to do. I have decided that I will listen to the doctors but with everything else going on with me some of the medicines for it I can’t even take because of heart condition conditions or colitis. I appreciate being accepted to the group and I just wish there was something like this for my parents back in the 80s and 90s

First posted on the Shift.ms app

@nats1234 

24 Jun 2025 17:08Last reply 26 Jun 2025 12:23

nats1234

Hey everyone Can someone please help me . I don’t know what to do n e more .. I hate having MS .it’s destroying my life I’ve never felt this low before 😞. I feel like a failure to my kids I’m 41 and feel like am 80 normal things that mums do and I can’t it’s breaking my heart . I’m lost and stuck don’t know what to do any more

First posted on the Shift.ms app
37

@Everaert 

7 Jun 2025 08:11

Everaert

Heart palpitations

Every time I do a workout or an intens activity, I experience heart palpitations during or after the exercise. It feels like the neurological signals to my heart are coming through properly, especialy when I'm tired or fatigued. Is there someone else who has the time?
First posted on the Shift.ms app

@JordanMac91 

26 Nov 2022 14:13Last reply 6 Jun 2025 19:52

JordanMac91

MS and Heart Palpitations

Does anyone else here experience heart palpitations/ flutters along with pinches and tingles along the chest / ribs area? I’ve recently been diagnosed and, while I’ve had every cardio examination under the sun over the years, I’m wondering if these sensations are a part of living with MS ? I also su...
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10

@Djcox 

7 Feb 2025 19:44Last reply 6 Jun 2025 19:08

Djcox

Does anyone experience heart arrhythmia/flutters with ms fatigue? Breathlessness when walking up stairs etc. I do have a heart condition and AS too but cardiologists can't detect afib it's strange.

First posted on the Shift.ms app
9

@RoseRivera1214 

1 Jun 2025 03:03Last reply 1 Jun 2025 07:24

RoseRivera1214

What to do?? Hi, my name is Rose. I’m new to this app. I was diagnosed with Ms back in 2016. Since than I’ve tried two dmts. Gilenya and mavenclad since than. Gilenya gave me horrible rashes for four years before my neuro switched me to mavenclad. That medication was the absolute worst. I lost about half of my hair and had frequent heart palpitations to where I needed a heart monitor twice. I only did the first year round 1 and never followed up for my second because of fear. I am meeting with my neuro within the next month about starting a new medication. What is some options that he could give me? And what is your personal experience with those DMTS?

First posted on the Shift.ms app
3
Deleted

@Miraal 

23 May 2025 22:13 EditedLast reply 26 May 2025 21:39

Miraal

Broken heart

Hi people, i hope you're doing good and feeling happy. I'm now again in a stupid situation where I'm heartbroken and depressed...all day crying 😭 I know it's not good for my MS, have you an idea how to fix my mood Vitamins included, medics I'm really broken, I hope it will not have an impact on m...
First posted on the Shift.ms app
23

@Fozzy681911 

27 Feb 2025 19:30Last reply 18 Apr 2025 07:53

Fozzy681911

Hi my daughter last year diagnosed with MS got first round of ocrruss medications due second round In April but the last two weeks she is getting more and more head aches and fatigue is this because Orruss is wearing off due in April or any other reason please any help or advice would mean so much my heart breaks for here thanks again

First posted on the Shift.ms app
14

@McfcKJ1969 

18 Feb 2025 06:47Last reply 16 Apr 2025 16:06

McfcKJ1969

Heartburn

Please can anyone tell me if they suffer from Heartburn. It’s making my life a misery I have mentioned it to my consultant to see if it is a symptom but I didn’t really get an answer xx
First posted on the Shift.ms app
6

@Twman 

29 Mar 2025 06:04 EditedLast reply 29 Mar 2025 16:01

Twman

Hi, I’m Todd. I was diagnosed 22 years ago at the age of 36. That’s right, I’m 58 and I don’t like it! I don’t look my age and I certainly don’t feel it. I play guitar, and I think it’s a big reason I stay young at heart. Nice to see that there’s a group for support, and general togetherness as a community of common life for us with MS. God Bless!

First posted on the Shift.ms app
3
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