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I think we can all agree that one of the worst things about this disease is all loss that one has to deal with because of it. I am very disabled now. I cannot walk, I cannot work, I have trouble speaking at times, swallowing is now becoming a chore. I have a Supra pubic catheter. I am beginning to ...

Just looking for some advice please. I’m trying to rent a car over the Christmas period. I’ve sold my current car in preparation for my new one but got the dreaded news it has been delayed. Currently without a car and wanted to visit relatives over the festive period. I’ve tried to rent a car from...

One of my symptoms is bladder/bowel urgency, I have a radar key. I was at a gig last night just waiting for the person to come out of the disabled toilet when I was approached by staff and asked to use the other main toilets (very long que) I explained and showed my key but someone in a wheelchair c...

Hey yall! Just joined the group and happy to be here. I was diagnosed with RRMS about 8 months ago, but have been dealing with symptoms for years. I was unfortunately ran over by a car last year about 6 months before my diagnosis. The one-two punch combo has left me unable to work for the past year ...

Hi all, has anybody managed to get a disabled person's railcard lately? (Who does not qualify for PIP) If so would you mind sharing the process and what was needed. TIA

MS has isolated me from the rest of the world. Lack confidence to search for love for fear of rejection. Just wondering if there is any site for disable like me to find love. OR should we start here a dating site even if it is virtual dating. It is just a question I am asking. sorry if it is no...

I thought I knew #ChronicPain ( and I don't mean being unable to score some sticky Icky) Then, during a month long attack of #sciatica (not my first) I developed a fucked ankle (not a medical term) - presumably #MS #spasticity in the peroneal muscle (shin/calf - not per_I_neal!). Can't walk (got t...

This is the second relapse I've had this year thats been really disabling. Loss of power in both legs, weakness, and foot drop. Double vision in my peripheral that hasn't recovered from the last relapse 6 months ago. I competed both years of Mavenclad and was in remission last year. Up coming MRI ...

Great article from Gavin Giannoni on this topic. Applies to Kesimpta and rituximab as well. If you have Substack, you can read for free. https://open.substack.com/pub/gavingiovannoni/p/serious-infections-on-anti-cd20-therapies?r=2f3ys&utm_medium=ios Bottom line - there is a 7% risk of serious infe...

Hi, everyone. In the past, I've managed to navigate airports on my own a couple of times, but I've not flown outside the UK since 2018. I was diagnosed with MS during the pandemic and began socialising far less than I used to and done it closer to home. I am now itching to travel abroad on my own...