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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@Lovebug1911 

Last reply

Lovebug1911

I confess I faked it for the first year I was diagnosed. I pretend to be like everyone else “normal” It was hard n it should have been I was living a lie in a way. I believe it was because I was diagnosed with ms when I was still in high school 17 years old. So honestly I am 40 now and feel free like I was forced to hide everything in my secret box in my mind and now it’s ok to be honest,to make friends with people who are like me that I can listen and also learn which I’m embarrassed to admit this is true that I’ve finally accepted that I have Multiple Sclerosis n that’s ok.

First posted on the Shift.ms app
55

@TinaMarieHouse 

Last reply

TinaMarieHouse

Hi everyone I'm very scared.My doctor is almost certain I have ms but she's running more test..I just would like some advice on how to handle the waiting. I also I've been looking at the symptoms on line and it scares me to death

First posted on the Shift.ms app
42

@Johnwayne 

Last reply

Johnwayne

Has anyone out here who has MS had a electrical like shocks go up their back and to the back of their neck to the base of their head and also problems swallowing and choking from time to time and falling down attacks ?

First posted on the Shift.ms app
32

@angiecope1225 

Last reply

angiecope1225

Hi everyone. So I'm sad. I wanted so bad to have ocuvus as my treatment. My insurance however disagrees with me and now I have to take dimethyl fumerate. The Dr said it will make me have some nausea and diarrhea. Also another side affect is flushing of face and neck. Who the heck wants to take that? I am scared to get sick so I haven't even taken it yet. Has anyone taken this? I need some help!

First posted on the Shift.ms app
21

@oakjackalope 

Last reply

oakjackalope

So i told my friend i couldn't do alot of stuff, but he called me lazy, because he coukd see me doing stuff some times. It really made me feel miss understood and i couldn't tell him, when i feel super fertiged and cant really move, cus im worred he is gonna think im using it as an excuse.he is also a close friend that i get on with very well.

First posted on the Shift.ms app
21

@Debora 

EditedLast reply

Debora

Hi everybody, if you look back, what were the possible signs of a disease and you ignored it or didnt take it too seriously? For me it was frequent headaches wizh vomiting,nobody send me to neurologist because they thout it was migraine triggered by stress at university. Also sleeping problems and sometimes tingling of a face.

First posted on the Shift.ms app
21

@Lovebug1911 

Last reply

Lovebug1911

Does anyone else have a relative who also has MS?

First posted on the Shift.ms app
18

@Shaystar37 

Last reply

Shaystar37

So I was on Copaxone for like 3 years it was working great. Then all of a sudden my relapses were happening more often. Just moved to Chicago 7 months ago and have now established care here. My Neurologist is wanting to start me on Kesimpta. Has anyone ever been on it? If so what were some side affects? Also side note I don't have a Pancreas so I am extremely nervous about trying new medications.

Calumet Park, United States
First posted on the Shift.ms app
18

@Johnwick 

Last reply

Johnwick

Hi everyone ☺️.... I joined this site hoping on my bump into someone who has had the same issue as me in getting diagnosed.... I've been off work for one year I have seen three separate neurologists three neurosurgeons a pain management specialist and my PCP cardiologist and ophthalmologist.... my symptoms have been pretty consistent for a year now ranges anywhere from pre syncope to diplopia staggered walking numb arms and legs when walking stroke like Sensations temporary dizziness when I get up out of bed vision is good one day bad the next sometimes excruciating headaches and constant thoracic issues like pressure in the center of the back causing numbness throughout the body....All signs seem to point to Ms which my mother had.... I also had an EEG which showed that I have brain trauma in the left hemispheric part of my brain along with slow focal focusing and white matter disease but no lesions..... all of my neurologists that I have seen and neurosurgeons and PCP cannot figure me out and they swear up and down that I do not have MS even though all signs point to it..... has anyone out here had this issue having a problem getting diagnosed and if you have please tell me what you did to get diagnosed I am desperate for help and want to get on with my life

First posted on the Shift.ms app
17

@Laurenmeyer115 

Last reply

Laurenmeyer115

I have in the past week gotten blurred vision or my eyes not focusing correctly...it's terrible been to eye Dr she couldn't find anything wrong which is good but....Anyone experienced this? Also anyone else on trizepitide? Experiences with that with MS?

First posted on the Shift.ms app
17
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