@Hi everyone ☺️.... I joined this site hoping on my bump into someone who has had the same issue as me in getting diagnosed.... I've been off work for one year I have seen three separate neurologists three neurosurgeons a pain management specialist and my PCP cardiologist and ophthalmologist.... my symptoms have been pretty consistent for a year now ranges anywhere from pre syncope to diplopia staggered walking numb arms and legs when walking stroke like Sensations temporary dizziness when I get up out of bed vision is good one day bad the next sometimes excruciating headaches and constant thoracic issues like pressure in the center of the back causing numbness throughout the body....All signs seem to point to Ms which my mother had.... I also had an EEG which showed that I have brain trauma in the left hemispheric part of my brain along with slow focal focusing and white matter disease but no lesions..... all of my neurologists that I have seen and neurosurgeons and PCP cannot figure me out and they swear up and down that I do not have MS even though all signs point to it..... has anyone out here had this issue having a problem getting diagnosed and if you have please tell me what you did to get diagnosed I am desperate for help and want to get on with my life on Shift.ms

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Hi everyone ☺️.... I joined this site hoping on my bump into someone who has had the same issue as me in getting diagnosed.... I've been off work for one year I have seen three separate neurologists three neurosurgeons a pain management specialist and my PCP cardiologist and ophthalmologist.... my symptoms have been pretty consistent for a year now ranges anywhere from pre syncope to diplopia staggered walking numb arms and legs when walking stroke like Sensations temporary dizziness when I get up out of bed vision is good one day bad the next sometimes excruciating headaches and constant thoracic issues like pressure in the center of the back causing numbness throughout the body....All signs seem to point to Ms which my mother had.... I also had an EEG which showed that I have brain trauma in the left hemispheric part of my brain along with slow focal focusing and white matter disease but no lesions..... all of my neurologists that I have seen and neurosurgeons and PCP cannot figure me out and they swear up and down that I do not have MS even though all signs point to it..... has anyone out here had this issue having a problem getting diagnosed and if you have please tell me what you did to get diagnosed I am desperate for help and want to get on with my life

First posted on the Shift.ms app

Man, that’s rough, I was recently diagnosed with rrms and one thing I learned during getting diagnosed and the appointments and stuff is that “you are your best advocate” I know it’s frustrating but don’t give up and if you feel like it’s MS keep going till you get answers.

8 Dec 2024 03:34

1

Thank you so much for your words of encouragement I have been so frustrated with these neurologists and neurosurgeons and I'm tired of living on valium everyday so I can function and losing my job would make me suicidal my job is everything to me !!!... thank you for your words of encouragement !!

8 Dec 2024 03:36