#this - Shift.ms

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15 Sep 2025 13:31Last reply 15 Sep 2025 17:23

I need someone else with multiple sclerosis’s thought on this. After I moved back into my mothers house after a abusive relationship and, after a family member past thinks I’m to “weak” to walk to the store even though I have walked further. Yet no madder how hard I try to show her I can do it and I need to be active she follows after what her new boyfriend says and thinks I need to stay home which is making my legs more weak.

First posted on the Shift.ms app

14 Sep 2025 09:38Last reply 15 Sep 2025 15:05

I was diagnosed with primary Progressive MS. I was prescribed Prednisone 50 MG. Take 24 tablets (1,200 mg). Take it one time daily for five days total. This is all new to me, if anyone can explain in detail please? Is this the first step, taking all theses pills for further treatment?

San Diego, United States

First posted on the Shift.ms app

14 Sep 2025 11:23 EditedLast reply 14 Sep 2025 23:39

I have tried several medications to help with my insomnia and nothing has seemed to touch it. I have failed on trazodone, amitriptyline, Seroquel and topamax. Any advice from anyone else suffering with this as well?

First posted on the Shift.ms app

13 Sep 2025 14:45Last reply 13 Sep 2025 14:56

Woke up early this morning muscle cramps in both legs and both arms. Woke up crying trying to relax, finally was able to stand to release tension in legs. Arms was a different issue.

First posted on the Shift.ms app

13 Sep 2025 10:49

I’m 65 subs off 1000. Surely 65 of you want to see some of the best MS related videos on the internet. Tell me the topics that matter to you. Let’s get people talking about this condition.

https://www.youtube.com/@MyMultipleSclerosisJourney

Myelin and me

Welcome to Myelin & Me: Life with Multiple Sclerosis I’m Mike — a dad, husband, and MS warrior. I was diagnosed with Multiple Sclerosis on June 10th, 2019, and this channel is my honest, hopeful take on living with it day to day. 🎥 What you’ll find here: • My personal MS journey • MS symptoms & fatigue tips • MS-friendly diets & supplements I’ve tried • Mental health, motivation & laughter • Wheelchair life, family, and honest talk https://www.gofundme.com/f/help-mike-get-his-allterrain-wheelchair-for-freedom-aware?lang=en_GB&utm_campaign=man_ss_icons&utm_medium=customer&utm_source=copy_link&attribution_id=sl%3A16502fd7-a15d-474b-b289-d3c9364791ea Enjoyed this video or found it helpful? You can support my MS journey and future content here: 👉 https://coff.ee/myelinandme 💬 Subscribe & join the MS community I also offer 1:1 coaching for MS book s free call . https://mswithmike.com/ #multiplesclerosis #MS #MSjourney #chronicillness #MSfatigue #MyelinAndMe

www.youtube.com

First posted on the Shift.ms app

12 Sep 2025 20:54

Hello all im Tasha Thompson 37 years old was diagnosed in 2016 with prms everything started in my mid-20s once I hit 30 everything started getting worse I now have all the medical treatment and everything I am incontinent I cannot walk no more stuck to either a wheelchair or a mobile chair I just would like to be able to to discuss this with other people like me

Bureau Junction, United States

First posted on the Shift.ms app

12 Sep 2025 18:27Last reply 12 Sep 2025 18:32

Hey everyone, it has been a while since I have checked in with the group. I have still being tested and poked and prodded and my neurologist is still saying it is MS even though he has not found the signs he is looking for, but all of the other things he has been testing for has been coming up negative And he says that the only thing left is MS and I’ve been told by several people don’t expect them to find what they are looking for as quick as I want them to find it. It takes time and it just feels like I am their personal science experiment at this point, but they have put me on some prescriptions to See if they will help me and I have also been doing some apothecary treatment that seems to help my nerve pain a little better than everything. They have been giving me. I have been treating myself with apothecary and their prescriptions and it seems to take my pain level down to a level two cause on my good days I used to be a level four and on my bad days, the scale wouldn’t go high enough to measure my pain when I was having flareups, but both my primary care physician my neurologist, both said to never go back to work because I am considered a liability, a fall risk and I have seemed to agree with them about going back to work for the fact that I have to take frequent breaks to catch my breath or energy And a hour break turns into a two hour break for me just to make it through the day I have to take at least 15 to 20 small breaks the last job I had before my doctor told me to stop working. They let me go for the fact that I had to Take too many breaks and half of them were to use the bathroom to change my urinary products and I have learned if I push myself too much I will not be worth anything. The next day there are days where I hurt so bad I can barely get out of bed, but with the treatment that I have been doing, they have been getting less frequent and I have been able to manage to have more better days than bad days but when the bad days hit, they hit hard but overall, I am still doing pretty good and I haven’t felt Pretty good in a long time. I know I’m not going to ever be completely cured but with the management I have been doing it has seemed to help a lot more than just what the doctors have been wanting me to do the apothecary. I have been using turmeric a super B supplement And cayenne pepper and it seems to help the medication‘s. The doctors have me on work a little better my nerve pain and joint pain are not as bad anymore. When I wake up my feet do not hurt as long as they used to when I first hit the floor and I have been working on my diet and the foods I’ve been eating to see if that will help and I appreciate the group, it has really helped me find the support and guidance. I need to keep myself motivated to keep my treatments going.

First posted on the Shift.ms app

12 Sep 2025 01:50 EditedLast reply 12 Sep 2025 13:11

Do you wear glasses? They say I need glasses and I've been to four different specialists and they tell me that glasses cannot help. I'm scared to even sit behind the drivers wheel. This is BS I'VE HAD 20/20 ASK MY LIFE

First posted on the Shift.ms app

10 Sep 2025 14:45Last reply 12 Sep 2025 05:54

I want to move on from this MS . Suggest me the better way please.

First posted on the Shift.ms app

7 Sep 2025 22:30Last reply 12 Sep 2025 05:35

I miss me. The me from just a few years ago. I see Facebook Memories or pics of me in my phone and it is clear the toll my PPMS has taken on me. I used to look quite young for my age. Not anymore. I’ll get past this feeling. I’m grateful to be alive and still mostly enjoying my life. But…I still miss me.

First posted on the Shift.ms app