#this - Shift.ms

this .

“ What if . . . Laziness is a habit of thinking about the cost of things, or the effort. Instead of thinking about the payoff? ” ~ Scott Adams

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@Shadwell

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Overdid it last week and had an elevated heart issue but also had my ocrevus infusion, since I am rubbish, shaking and cannot walk far, my existing symptoms are elevated, has anyone else experienced this

Swansea, United Kingdom

First posted on the Shift.ms app

2

@JeanneH66

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Hi, I'm fairly new to the community. I was diagnosed with MS in 2001. I've tried several "old school" treatments such as Copaxone, Betaseron and Rebif. I went off all meds around 2015 because I got tired of feeling the flu like symptoms. I suffered a pretty bad exacerbation in 2016 where I was hospitalized for 7 days while I completed steroid infusions. My MRI at that time showed new scars, one of which was on my cervical spine. The steroids did me well for several years. I didn't have any new symptoms until 2023. I've had several MRI's since, all of which show no new scars. My neurologist has refused to treat me with steroids because I don't have new scars. I told him I was open to infusion therapy and we decided on Rituximab. I will be starting my first infusion on Monday, July 20th. Does anyone have experience with this particular medication? If so, has it improved your symptoms and what can I expect as far as any side effects? Thank you in advance for any feedback.😊

First posted on the Shift.ms app

7

Deleted

@port

EditedLast reply

I am new to this forum and welcome any advice from people about how to help family understand. Difficult here with my adult child and feeling misunderstood and not able to help him through suffering but also feel like he may think I’m faking or drama queen. I am also concerned about how He is having to live with Ms too. It’s really hard. I’m usually a good communicator but we’re tangled up. I welcome any ideas people might share. Thank you.

First posted on the Shift.ms app

10

@time after time

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I’m 73 years old. It has taken two years of testing and various other progressions to get diagnosed with MS. I now face more evaluation this coming week and am exhausted just to think of explaining my symptoms and frustration. Words of wisdom?

First posted on the Shift.ms app

1

@kala21

EditedLast reply

I’m experiencing neuropathic nerve pain in my legs and feet 😔 Its so mentally draining I’m finding it hard to cope with because I got to stay active to keep my mind sane and because I can’t do that right now I’m not coping at all. I’m having bad thoughts and I don’t normally get this low or depressed. How do you all manage this?

Aberdare, United Kingdom

First posted on the Shift.ms app

9

@AndrewK

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Which warriors on this platform are from Pennsylvania?

First posted on the Shift.ms app

4

@Simpson021783

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Well this has been a monumental let down

Finding community on this site has been a constant uphill battle. No conversation seems to last, and unfortunately no community either. Not for me at least. And especially when I'm stuck in the middle of Nowhere, NC. Hopefully something gives here soon and I get to make a major change in my life- bu...

Louisburg, United States

First posted on the Shift.ms app

27

@Milojka

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So annoyed with this...

I was telling someone about my MS diagnosis, saying that it has been lifechanging for me. Briefly listed up some symptoms eg weakness in legs, poor balance, fatigue. Her comment: I have exactly the same, it comes with menopause and ageing, we all have to go through it. Anyone recognises this? And w...

34

@Flores_Doramis_Jr_

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My doctor told me that occrevus is changing from an infusion to a injection in stomach anybody else heard of this

First posted on the Shift.ms app

13

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