Shift.ms

6 Apr 2025 20:07Last reply 7 Apr 2025 11:14

Will I ever feel like myself again?

Hi all, I was diagnosed in Jan of this year after a severe bout of optic neuritis. During the diagnostic process i developed a spinal leak and headache from the lumbar puncture and have had residual pain and nerve issues in my lower back after the epidural blood patch to seal it. My eyesight improv...

@terkillie

4 Apr 2025 12:48Last reply 5 Apr 2025 00:26

Looking for personal experience of DMT

Hi, I have be on Tysabri since diagnosis 2 years ago which has kept me really stable but unfortunately my latest bloods came back JCV positive so need to change treatment. My options are ocrevus or kesimpta…keen to hear peoples experiences of both. Thanks for reading Terri

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@Brainfog

1 Apr 2025 19:46Last reply 1 Apr 2025 20:11

1st kesimpta injection

Well after what seemed alot of sorting and time ,which I have to say made me nearly bail on treatment! I have done my 1st injection, Wow as the day has gone on I feel like I have been run over by a bus , cold, hurting ,weak, crikey what have I done

Peterborough, UK

@skezz

31 Mar 2025 11:10Last reply 2 Apr 2025 15:07

Possibly losing my job

I’m so unbelievably anxious that I may lose my job…since August last year I’ve been off sick multiple times, MS investigations, infusions, MRI’s, Lumbar puncture, adverse effects of kesimpta, surgery, insanely bad fatigue, bed bound with vertigo, my work has been so lovely the whole time and I came ...

First posted on the Shift.ms app

@tlitke

29 Mar 2025 05:44Last reply 29 Mar 2025 08:31

Kesimpta

Hi there- I’ve been on Kesimpta since the end of September- I still feel rough some days, optic neuritis, headaches, dizziness, balance issues body aches and endless fatigue- everyone keeps telling me it will take time for me and my body/MS to adjust to treatment but when have these things started t...

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@toni1286

27 Mar 2025 22:24Last reply 29 Mar 2025 07:52

Help with what treatment to go for

Hi all finally got settled on pain relief after dailing with anytriptaline and gabapentine im now on 300mg of pregablin got results of my new mri and no improvement but 2 more marks with halo's so got my appointment tomorrow to discuss treatment, to start treatment next month ive read the leaflets a...

First posted on the Shift.ms app

@Christownley

25 Mar 2025 21:05Last reply 25 Mar 2025 21:58

Is anyone taking lions mane why being on kesimpta?

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@CinC

25 Mar 2025 00:57 EditedLast reply 25 Mar 2025 01:33

HELP, PLEASE!!

I was changed to ocrivus from kesimpta shots. I usually take oxycodone for my neck. Problem is my RL(limb) syndrome isn't being subsided by what I'm taking anymore. I have an issue with my jerking from the shoulder. Over and over and over again. Any tips or advice or comments? Anything. I'm sure ...

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@clars64

24 Mar 2025 20:20Last reply 24 Mar 2025 23:42

I was diagnosed 17 years ago. Started with Tecfidera then Ocrevus, and now Kesimpta. My question/frustration is as follows. What should i expect from my Dr.? He is a neurologist. I see him 1 time a year which follows an MRi. We meet for 10 minutes and he tells me the MEI showed “ no remarkable changes”. Appointment complete. I get nothing about me and my progressing disability. I feel like a data point and nothing else. Thoughts? Thanks

Suring, United States

First posted on the Shift.ms app

@Rachael1788

24 Mar 2025 15:37Last reply 25 Mar 2025 16:45

Great to be here

Stumbled on this network by total accident. I was diagnosed in April 2023. Due to start Kesimpta any time now. I don't know anyone else who actually has MS so looking for knowledge and real life experience.

First posted on the Shift.ms app

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