@winklebortย 

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winklebort

MS noob trying to understand shift.ms

Diagnosed in September 2022. I sure as hell don't understand MS so far, and my therapist showed me this site, and I have to say I don't understand it yet. Or rather how to relate to it. It seems like twitter for MS people, and without all the engineers quitting. But, I could never really relate to twitter, either fwiw. Maybe it's more of an online community that supports one another through the many and varied shit-tastic journeys through MS. I've been a part of online communities since the bbs days. (no one actually knows what those it's okay). So, my mind is open. I need help really. I would love to help others eventually. I'm looking for people to talk to as I don't know whether I'm feeling real symptoms or not. I've lived with Crohn's for almost 30 years. But neurological inflammation is scary. Seems permanent. I started the Wahl's diet. I've been on a similar diet for Crohn's and had great success - remission for 15 years, so I've been hopeful it'll be the ticket. So far, mixed results. Loads of vertigo today. But, I really don't want to take ozanimod. It scares me. Though, it probably shouldn't? I guess you just try it and see? I think damaged myelin is scarier. As an aside, I suspect the biologic i was on for Crohn's triggered MS in me, but then again, never any way to know. Not sure if posting will make me feel better. But here it goes. It can't hurt, and y'all see like a good lot. (And mostly british which is why i said "lot".). ๐Ÿ™ƒ๐Ÿ™‚
@BillySmith

Hey @winklebort - I made some short videos that introduce you to the site and show you how to use it here: https://bit.ly/shiftmshey - I hope that helps :)

@Aimeesb

I got diagnosed around the same time, welcome we can talk if you wanna