@sigmadelta 

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sigmadelta

It's a Ghost in the Machine

I've had MS for 26 yrs. It's gone from almost un-noticeable to relapsing remitting to secondary progressive in the last 2 years. In spite of countless scans, examinations and consultations... one thing has become quite clear. NO-ONE has any idea what they are dealing with. Treatments are for symptoms, not cause. NO-ONE has any idea what actually is causing the immune system to malfunction. The causal abnormality/malfunction does not appear on any test equipment we have today. Yet it is there... somewhere. My consultant is as oblivious to the answer as I am. Furthermore, she assured me that NOTHING would make me better, I could only hope for some alleviation. Well, Frankly an aspirin will work as well as most treatments and do less damage. All current 'treatments' only deal with the symptoms, with little or no regard for what it's doing to the rest of your body. I have undergone several , and Plegridy was the worst... it left me legless for 3 days at a time. Now I just eat only organic foods, and hope for the best. I am sure that modern lifestyles are a contributory factor, and in years to come the truth about petrol/diesel fumes will come out. But of course we can't possibly go down that road, society would come to end. It will remain a Ghost in the machine.
@Stumbler

@sigmadelta , I can't really disagree with any of your comments. The brain is a complex and very powerful organ and is not fully understood. Well, not yet. Our medical professionals do their best, given the tools at their disposal. Current treatments are in two groups, Disease Modifying Treatments (DMTs), which try to slowdown the progress of MS and symptom management. Unfortunately, once our condition becomes Progressive, DMTs are discounted. Yes, modern day living is probably slowly killing us. But, that's progress and capitalism for you!

@TracyD

@sigmadelta Have you tried to get involved in the Orecruvus trials and studies ? It's targetted at stopping progression not symptom management ?