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Advice. Help

Hi I only got diagnosed 2 weeks ago. I got diagnosed while in hospital and they just told me I had relapse and remission and sent me on my way and told me ill be seen in outpatients the waiting time is up to 10 weeks. I'm really confused and scared I don't understand what's happening what I'm supposed to do in this time. I went to hospital because my right leg has gone numb and I can't feel sharp soft or hot and cold not anything. my left leg got very weak. I couldn't walk or dress myself. They gave me 5 days of steriods when I left the hospital. That helped a lot with my left leg and done nothing with my right. Sence then iv had a lot of pain in my back. Also tightness in my tummy And ribs. I keep trying to see a doctor they just gave me codine and told me to wait for my appointment with neurology. 🤢😭😦

Hi I am very sorry to hear of your diagnosis - it must be scary, but rest assured you are definitely not alone. There are many other people on this journey with you. I've had this for 27 years now and I can still hold it together with the best of them. All I would advise for now is rest and allow your body to heal itself with the help you already have and read everything you can about this. You are about to become your best expert in your condition, so don't confine yourself to conventional medical information - learn, research and take control. Then when you do get to your appointment you will be armed with a list of questions and ready to do everything you can, with or without a consultant, to help yourself going forward best wishes Vicky


Hiya I'm so sorry to hear the sadness and confusion in your voice. Sadly this is the scenario for most people diagnosed with MS (and I'm sure it is similar for other chronic illness), so I can appreciate how you feel. Vicky has given you wise words so there isn't a great deal I can add. I've been diagnosed just over 3 and 1/2 years and am still very much on a journey of self discovery and learning every day what is and isn't best for my overall health and wellbeing...it's a journey my lovely and you have to do what's right for you, not what others tell you to do! That said, I promise you it gets easier Hun. You just have to not fight it and as Vicky said, listen to your body, as frustrating as that sometimes is, as it knows what's best. Research is good but so is taking your time. Don't overwhelm yourself with info, don't put pressure on yourself to have all the answers and don't be afraid to reach out. You may not get the answers or support you need from the hospital etc but you will always get a reply on here, on social media support groups and from true friends. I find the ms helpline is good if you need a cry or impartial ear and I will always try and answer if you ever want to DM me. Be kind to yourself Hun. I find Bach flowers help me, perhaps google them and see which resonate if you want something to get a handle on your emotions/feelings/shock...if you need any guidance or a rant just shout. Hopefully the shift ms buddy service will start soon so you can have a point of direct support. Take care flower x