New Diagnoses
Hey guys! My name is Jesse, I'm 23 years old and was just diagnosed with MS a little over 2 weeks ago. Just wanted to express how i went to the doctor and maybe some help with what to expect next week on Monday when i go back to the neurologist.
So about a month ago I was having this feeling of pressure in my face. it was right by my nose and I initially thought it was allergies so i started taking over the counter allergy meds to clear it up. Needless to say that didn't help me what so ever and the pressure started to get worst. I would start to get blurry vision and started to have a hard time concentrating on everything. It was until I experienced what I would call a black out moment at work that I decided okay its time to go to the doctor. After a long couple of hours in the ER and a MRI later that they told me I had MS. I didn't quite know how to process it besides the fact that I know my mom also has MS. At the time of the diagnoses I did not have insurance but am going back Monday to see the doctor and start talking about treatment. Anything you guys could tell me as in what I would be looking forward too? Its been a weird time for me as I've been trying to educate my self as to what MS even is and if there is anything I can do to help make sure it doesn't get out of control. any info/advice is greatly welcomed!
Just make sure to know all of your options when choosing a treatment, you will get a choice depending on your kind of ms your age and other factors, make sure you gather all of the information so you know exactly what you're signing up for essentially, I hope you're handling the news ok, I got diagnosed young too I was only 16 and I was devistated, I still feel like I'm talking about someone else when I discuss it with anyone, I'm also new to this site, I should have joined a support network when I was first diagnosed aswell, so I'm glad you have that 😊 hope this was slightly helpful
hi @ramije97 and welcome. I came across this blog post today. It's useful for someone newly diagnosed to read to get you in the right mindset:- https://keithsblogcabin.com/2021/09/28/a-letter-to-my-newly-diagnosed-self/ Anyway, your next Neuro's appointment will be concerning the way ahead and how your MS can be managed. So, look at the available treatments, to understand what may be available. Present day thinking is to start with the most efficacious treatment, to hit MS hard and fast. More conservative Neuros will start slowly, only increasing the effectiveness of treatments as you get worse. So, write down your thoughts and any questions, so you don't forget anything. And go accompanied to your appointment, as two sets of ears hears more than one pair. In the meantime, live healthily, eat healthily and avoid stress. Stress seems to be an agitator of MS.