Oh well, onward!!
I’m almost 4 years post last lemtrada infusion and I got the phone call today that I hoped I wouldn’t get . . . . New lesions (6) on my last MRI. Over the last few years I felt pretty good. Still working full time and am fairly active out and about so feel as though I can’t complain. No real noticeable relapses, bar having increased spasm around my knees and had an episode of pins n needles on my heel on one foot which lasted 3-4 days then settled!
So the consultant is now recommending tysabri or ocrevus round 3 of lemtrada not available in Northern Ireland. But with everything that’s going on (Covid) he feels tysabri is the better choice.
Has anyone here switched? How do those having infusions find it? Any thoughts/opinions/ tips/advice?
Thanks in advance
I’m on no medication so can’t advise but I hope you find the right treatment that works 😘
I was on Copaxone for close to 10 years and then several on Rebif with relapses and progression. I likely transitioned to SPMS and have been switched to Ocrevus with little or no progression and no new lesions, atrophy or bad changes to black holes. So changing it up was good for me, I think ;-) If one attack doesn't work try another although you have to give it enough time to see. You've probably seen recommendations to check out Dr Boster's You Tube channel but a frequent quote is to think about a DMT like birth control...if you keep having kids it must not be working ;-0 have the same expectations. What you are on should shut it down and that should be the new level of our expectations with this round of drugs...keep asking the questions and accept no new lesion ;-)