Anyone using LDN as their only DMD?
I am on some symptom relief drugs for MS like Baclofen and Ampyra, but as my last round of Rituxan wears off, LDN will be the only pharmaceutical protection between me and a relapse. I am nervous as my disease was quite active before the LDN and Rituxan. I have been stable for 5 years or so now, but I don't know which medication is keeping me that way. I want to risk that it is the LDN, but most medical people don't give it the credit that people feel it deserves so I don't have real support from my neurologist. One wants me to stay on Rituxan and the other wants me on Gilenya. I'd rather not have either. Anybody else using LDN as their only MS defense?
me me!! Yeah i only use LDN and touch wood i've been relatively stable.....although i'm due to see my neuro regarding MRI results and see if there is any new activity. I only had that in Feb so efficient then!!. Like you say i'm never sure whether it's the LDN keeping me stable or it's just a natural MS thing and i've been quite lucky. Have to mention the last time i saw my neuro and mentioned LDN he said 'oh that mumbo jumbo!!'....of course that flicked the 'i'm pi**ed off with you now for taking the pi** out of me' switch and immediately made me go on it!!
Hi there! Yep im in LDN and dont take anything else. I have been on it about 2 1/2 months and so far no relapse so we shall see. im on a crazy low dose tho am building it up stupidly slowly actually. im on 1.8mg at the mo. My neurologist can u believe it is actually ok with me being on it. I have had 2 relapses- one last sept and 1 in may. he said at the moment my MS is mild (hopefulyl it stays that way) and he said im only ok with u being on it cos i aint heard of one person having a bad experience on it. He said if i was to relapse again in 1 year he would b v pushy to go on copaxone. There is no way i would stop LDN. x