Lemtrada vs Tysabri (vs Mavenclad)
Hi guys,
I have recently been diagnosed with MS after I started getting constant vision and balance issues, since then i have developed some new symptoms (Lhermittes (is that how you spell it?), Numb Legs in the morning and other small stuff).
I have been told that i have had two relapses in the past 6 months and have therefore been suggested Lemtrada, I wanted to ask everyone how their experiences have been with it? Long term and short?
Tysabri and Mavenclad have also been mentioned, and the side effects of Lemtrada do scare me (mainly the linked Thyroid issues!). Has anyone had any experiences (good or bad) with these?
cheers,
J
Hi @jm141 and welcome. It is a tough call, when you're not long post-diagnosis and you're asked to consider powerful treatments. However, you have to weigh up the risk of some of the side-effects, against the risk of the potential damage that untreated MS can cause. The possibility of a manageable thyroid condition soon pales into insignificance against a lifetime in a wheelchair! You should take some time out to read our @tracyd 's Lemtrada blog :- http://tracyslemtradajourney.blogspot.com/ This includes her rationale for demanding this treatment, all the way through to three years post-treatment.
As per stumblers summons’s here I am :) All I can add Is that I’m currently three years beyond disease activity and that is thanks to Lem Life is wonderful again but it’s not a guarantee all Lemtrada offers is to stop the progression and it has stopped Mine. My life the last 3 1/2 years is recorded in real time online. www.tracyslemtradajourney.co.uk <span style="color: #ff0000;">**Note** weblink corrected - Admin</span>