@hollylb10 

Last reply

hollylb10

DMT and opinions

I have found this site so helpful and love speaking to people with similar experiences to mine, get support and offer support. But I have not been using it as often as I used to as I sometimes I have left feeling negative or a bit upset. When I was first diagnosed I wanted Lemtrada, I was then devastated that I was not going to be offered it and the consultant told me I would not qualify for it. I reluctantly chose another treatment as I was told it was in my best interests to start a treatment early. I am now so pleased with the decision and happy with the treatment I am on at the moment. There were a few issues in the beginning as I am not a big eater and found myself having to force food down me just so I could take my meds. But now I feel better than I have for a few years and also 'normal' after only 4 weeks. The thing that upsets me is so many people believe that with out Lemtrada the disease will only get worse. I have a different view to this as I had a relative who had MS who never received any treatment as at the time there was non available....guess what? She made it well into her 80s and had a 'normal' life. So even though we can't guarantee our future, there is hope for some people. For all we know there is something worse than MS waiting round the corner. I am confident that my drug choice will delay any activity, and if that changes I will of course consider other treatments. Some people have been offered Lem and others not, I don't want to be made to feel any worse than I already do knowing that I am one who has not been offered it. So I ask people to be more sensitive when talking about drug choice, and if you are deciding on a treatment trust your consultant and if you don't ask for a second opinion. I wanted Lem, couldn't get it, but I am confident that my future is still good. Nothing is a cure, nothing is a guarantee. Please no negative comments. I just want people to know that some are more sensitive than others and pushing something that is not available to everyone is disheartening. I know this because I am one of those people. Have a good day everyone! Stay positive and happy :)
@Monica2015

@hollylb10, I completely agree with you, hence my comments on is lemtrada the only drug worth taking? I managed to obtain it, but am extremely sensitive and reticent to attempt to proclaim it as the King of all drugs, as we are all at different stages, of differing thinking, and where we are and what we are ready for. Besides which, it has not not worked in all cases in any event. So, I agree sensitivity to others is the way forward!

@Stumbler

@hollylb10 , a very good point and put across very well. :)