@dmohield 

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dmohield

Hey there!

Hey everyone I'm Dani :) I was diagnosed with remitting-relapsing MS in May 2019. I’m a 3rd year med student; I had symptoms for 2 years prior (numbness in my limbs and spine ; my grades were slipping Bc I couldn’t remember things but ofc my family just chalked it up to not studying hard enough 😒 I was always fatigued and I noticed my balance wasn’t so good but I didn’t think much of it) I went to a neurologist complaining of numbess on my right side that I noticed bc I couldn’t write neatly while I studied; they rejected all of my complaints and concluded it was because I had vitamin d deficiency (correlation? Where is it? 😂). I really didn’t feel like that’s what was wrong so I went to my gp who concluded the same thing because I have a history of iron deficiency anemia. It was super frustrating - I felt like everyone just pushed me and my complaints aside. Last year, I lost feeling in my limbs and I was unable to speak without a stutter or a delay. Couldn’t walk, my balance was zero, I couldn’t hold anything without dropping it. When I put my chin to my chest, I would feel like an electric shock type of thing - that was the scariest part for me. Finally went to an ER and got an MRI and the doctor suspected MS. I traveled to Egypt (better healthcare there than Sudan and couldn't go too far because I had uni) and from there I got my final diagnosis and treatment plans. I used to live in Sudan (my parents are originally from there but I was born and raised in the US); I wanted to embrace my roots and learn more about the culture so I decided to go to university there. I was put on Gilenya but because its not available in Sudan, I would get it sent from Egypt every month. Now when the pandemic hit, all the airports shut and my supply was running dangerously low. I ended up having to survive 6 months without Gilenya - YIKES. Miraculously, I didn't have an episode in those 6 months. As soon as travel was permitted, I hopped on a plane and immediately went to Egypt. Within 2 days of arriving in Egypt, I had a BIG episode. My lungs were completely numb, vision blurry, I was rejecting all foods, it was a struggle. I took cortisone infusions and stopped the episode then my doc decided to wash me out of Gilenya and switched me to Tysabri. So far its been great! I had already decided to transfer universities so now I live in Egypt and the treatments would be easier to get! I'm going to the US for a few months till uni starts up again and I'm gonna go get checked out and see if my doctor there agrees with the treatment plan I'm on. Anyways, that's my story! I'm living my life to the best of my ability and I'm staying positive :)
@watsoncraig

Hi 👋 That is some tale of woe