@chroniclouise 

Last reply

chroniclouise

Surviving and absolutely not thriving

I'm due to see my neurologist for the first time since I was diagnosed ten months ago and I'm feeling anxious about it. My neurologist told me that I wasn't being offered any treatment at this stage because and I quote "You are far from my worst off patients" which as reassuring as he might have intended it to be just left me feeling dismissed and unheard. I was diagnosed in June 2022 and I was told I would see my neurologist again within six weeks but it's been 10 months and its safe to say I'm struggling. Since the end of last year I have issue after issue. Some related to MS and some related to my other health challenges. March has been a particularly hard month. I've had worsening fatigue, tingling in my face, feet and legs, slow transit bowel constipation which led to hospital treatment, muscles spasms (causing severe pain and affected my walking), dizziness and worsening balance. I feel like every day is such a challenge and it just feels like it's getting worse. I keep thinking each week that this will be the week that things will improve and it doesn't quite happen. I'm not quite sure what the purpose of this post is. I guess I'm just feeling a little lost and still in denial about the diagnosis, particularly as my neurologist was a bit dismissive about it all and said it was mild and I was fine, essentially. *sighs* It'll be interesting to see if there have been any changes on an MRI (which I'm hoping will happen after my appointment) and whether the neurologist would be more open to treatment now. I've never felt more lost and alone in my whole life tbh.
@Lowlander

@chroniclouise Ask your GP to refer you to another neuro preferably an ms specialist.

1
@VanessaJ

Maybe it would be a good idea for you to write a list of all the things you want to ask/say to your neurologist as it's easy for your mind to go blank when your there, especially if you feel overwhelmed and anxious. I'm surprised you aren't being offered any medication. My neurologist told me a few months ago that they like to start meds asap today rather than wait as ms can go on in the background...

1