@bluestorm 

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bluestorm

Living to work

I was diagnosed at the beginning of this year (RRMS) but have, no doubt, been living with it for many years, given that it was only when I developed my 21st lesion that I was diagnosed. I work full time in the edtech sector as a Learning Designer - but, thankfully, its a remote position so I am in the comfort of my own home. I am supposed to work 40 hours a week (8 hours a day, 5 days a week), but usually end up working more than that due to the nature of this high-pressure environment and constant deadlines. I am just as productive now as I was before my diagnosis. BUT... After working all week, I find that my weekend then involves copious amounts of recovery. Sure, I can push through if absolutely necessary. I have a young son who usually plays team sport on the weekends, and I'm determined to always be on the sidelines cheering him on. And I generally attend family gatherings because I'm guilty of suffering from FOMO. But outside of that, I'm usually in bed resting or sleeping for the rest of my precious two days off. I certainly don't have the energy for going out with friends - which I certainly miss. Does anyone else feel like they are simply living to work? Like paying the bills has become their sole focus, and there's nothing left of themselves after that to actually LIVE?
@Krys

Hi I too work full time and feel exactly like you. I push myself to do the odd social occasion but most of the time do not go out for weeks at a time. I work to pay the bills and to save as much money as I can to help my daughter with a deposit for a house. I do this as I am secondary progressive and want to help my children before I m no longer able to. It is hard but I want to do the best for my family while I can.

@steph_splash

I completely agree, I do go into the office 3 days a week but I am in an incredibly toxic work environment that doesn’t accept my MS either. I’m fed up of living to work, all my down time is consumed by either worrying about work or sleeping 😓