Diagnoses now SPMS + Relapse
Hi All,
got a letter from my Neuro who has now diagnosed me with SPMS with relapses previously RRMS. I am on Aubagio at present and have not had any relapses since being on it (about 2 years now) but have noticed slight degredation in my mobility and a slight worsening in anxiety.
I had a scan recently which showed no new lesions and no active disease activity but did highlight demylenatioin compared to my scan 2 years ago.
To that end I have asked him about Lemtrada, I know it cannot reverse what has been done but surely anything that can inhibit or reduce the impact of the disease should be on the table?
Anyone with SPMS with Relapses tried it out?
I can't give you advice about Lemtrada because I chose Cladribine. Have you thought about this drug? The doctors at Barts are keen to give it to people with SPMS. You can read about it here: http://multiple-sclerosis-research.blogspot.com/2016/01/suppose-there-was-therapy-for-all.html
I've had SPMS, no relapses, but mild lesion evidence on MRI. Lemtrada sounds effective but not easy to tolerate. Check out the Facebook Lemtrada page to get a feel of how it goes. I have chosen rituximab a few years ago in a trial, and more recently I took cladribine. Either lemtrada or the others should be better than Aubagio.