Any fatigue advice?
I'm looking for any advice that I can get. I was diagnosed six years ago (RRMS) and aside from one major relapse and the decimation of my social life, I'd been mostly managing. Work (office-based) was fine, although working was tiring me enough that doing anything in the evenings did not appeal. Fatigue did occasionally take hold, but this seemed to be in short bursts, hours to days.
My energy levels have been deteriorating since the start of last year, to the point where I've been off sick from work since March and am mostly a prisoner in my own home because of the exertion required to go anywhere or do anything. I don't remember the last time I left home to go somewhere that wasn't a pharmacy, doctors or hospital. My neurologist put me on fluoxetine, which had no effect and then amantadine, which has some effect, but hasn't really addressed the problem as it's caused issues with insomnia and my level of activity hasn't improved since taking it.
I know one way out of this is some form of (very mild) exercise, and the timing of my deterioration with lockdown cannot be ignored (there have also been other factors that increased my stress levels at the start of last year), but doing anything at all is very hard and the consequences of anything, however minor, seem to be that I'm even worse. The last few months appeared to have disappeared with me existing, rather than living in any way, in bed for anything up to 18 hours per day and stuck on the sofa for the rest of it. I'm living in a complete mess, but not really able to do anything about it. I'm managing to feed myself (not particularly well), but that's really it.
I was wondering if anyone had any similar experiences and if anyone had any advice on recovery? Whilst work (which has been from home since the start of the pandemic) was probably not helping, its absence hasn't led to any sense of feeling rested, which I thought and hoped it would. I know recovery will likely be a very long process, but what I really need is a catalyst to get it started as currently, I'm not improving.
1. Good Diet 2. Excercise 3. Plenty of water 4. Plenty of fresh air 5. Plenty of vitamins too Address any underlying causes, are any medications effecting you. Are you suffering from depression? https://multiplesclerosisnewstoday.com/news-posts/2021/07/22/multivitamin-supplements-reduce-multiple-sclerosis-fatigue-improve-quality-of-life/
Hi, I found going gluten free really helped my fatique also going outside in the fresh air, I can feel terrible with awful fatique then once i'm outside I feel so much better think it is the fresh air and excecise, hope this helps for you