@StrictlySoca 

Last reply

StrictlySoca

National Poetry Day and my cognitive function

I’m in mourning for my brain this week as I’ve had to make the decision to go for medical retirement after 11 years of continuing to work with MS chewing away at my cognitive function. Recently been retested at neuropsychological service and the decline was shockingly apparent. Even having the OT come to work and get me more adjustments can’t change the memory extinction problems and my issues with calendar (weird result of the last relapse). Don’t feel safe working with vulnerable mental clients. It’s horrid to feel like this. I could probably do a less demanding job but I am also 61 so maybe cut myself some slack here. Experience of getting early retirement welcome. Here's a punk poem wot I wrote For the MS warriors I’ve got MS, it hasn’t got me Bullshit clichéd fallacy It’s a form of dementia Your brain is shrinking It can’t be cured by positive thinking But you look so well, I’d never guess Cunning bastard hidden MS You won’t see my shitty mess You can’t know that I’m depressed By a catheter each time I pee You embarrassed not me MS warriors fighting the fight MS battalions eyes right Yes with your diets you’re in control MS can’t get your body or soul But don’t forget mind but you probably will Cognitive function failure carries on still Your brave cripple narratives get right on my wick let’s stand up and own we’re fucking sick Sick of this nerve shredding waiting stress Cunning bastard hidden MS Copyright 2019
@Laurie_F

I can totally relate! I'm 37 and don't work because my brain just isn't reliable enough! Be kind to yourself! You've tried so hard! Love the poem! 😊 xx

@Criscross21

Well structured poem! First one I’ve read on the topic. I bet it felt good to write …maybe I’ll try to do the same. I too had to stop working (now only part time from home) 15 years after diagnosis. So, yes, I felt that I pushed forward as long as possible, and did try less demanding jobs during the last couple of years. Yes, cut yourself some slack and be OK with backing away from employment WHEN you reach that point where you sense you are doing more damage to yourself.