National Poetry Day and my cognitive function
I’m in mourning for my brain this week as I’ve had to make the decision to go for medical retirement after 11 years of continuing to work with MS chewing away at my cognitive function. Recently been retested at neuropsychological service and the decline was shockingly apparent. Even having the OT come to work and get me more adjustments can’t change the memory extinction problems and my issues with calendar (weird result of the last relapse). Don’t feel safe working with vulnerable mental clients. It’s horrid to feel like this. I could probably do a less demanding job but I am also 61 so maybe cut myself some slack here.
Experience of getting early retirement welcome.
Here's a punk poem wot I wrote
For the MS warriors
I’ve got MS, it hasn’t got me
Bullshit clichéd fallacy
It’s a form of dementia
Your brain is shrinking
It can’t be cured by positive thinking
But you look so well, I’d never guess
Cunning bastard hidden MS
You won’t see my shitty mess
You can’t know that I’m depressed
By a catheter each time I pee
You embarrassed not me
MS warriors fighting the fight
MS battalions eyes right
Yes with your diets you’re in control
MS can’t get your body or soul
But don’t forget mind but you probably will
Cognitive function failure carries on still
Your brave cripple narratives get right on my wick
let’s stand up and own we’re fucking sick
Sick of this nerve shredding waiting stress
Cunning bastard hidden MS
Copyright 2019
I can totally relate! I'm 37 and don't work because my brain just isn't reliable enough! Be kind to yourself! You've tried so hard! Love the poem! 😊 xx
Well structured poem! First one I’ve read on the topic. I bet it felt good to write …maybe I’ll try to do the same. I too had to stop working (now only part time from home) 15 years after diagnosis. So, yes, I felt that I pushed forward as long as possible, and did try less demanding jobs during the last couple of years. Yes, cut yourself some slack and be OK with backing away from employment WHEN you reach that point where you sense you are doing more damage to yourself.