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@SpanishSERGIO 

Last reply

SpanishSERGIO

Thoughts From Spain

Hi to Everyone!! Just diagnosed MS, I only wanted to share the feeling I'm living with. I'm desperate about people's positivism when talk to me. It's like, come on you can do this... Many people have it and they are really well (when people not having MS say such a thing, they mean they know cases of people having MS who don't need a wheelchair, as they only know WHEELCHAIR when talking about MS) How do you deal with that frustration? I've been told too the typical statement 'I can be dead tomorrow in a car accident' Yessss... You could!! As I could... But you don't have the reality I am living with... I don't know if I'm explaining well my feelings... Dizziness I have, is not visible (so you are OK) pain I have is not visible (so you are OK) tingling etc. They don't feel the uncertainty we have...!! Even I've been told by my father that he also has problems like high tension blood... Come on!!! It's frustrating... Or my brother in law, hey Sergio, I'm like you, I'm having back pain... Please don't compare!! I would like to be you! It's almost an insult to me when they talk to me in that way... Thanks for reading. From Barcelona
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@NorasMom
@NorasMom
 

It definitely gets frustrating, and I can't offer any advice. My mother has finally admitted that no one without MS will ever understand what we deal with. That's been a long time coming, because she used to tell me that I was just lazy and needed to exercise more or organize my time better. It's only been since watching me deteriorate over the last couple years that it's finally sunk in that this is not something that I have any control over. The best I can suggest is to avoid those people when possible (which you can't really do with your family) and then come on the forums and rant to people who understand exactly what you're talking about.

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@sprout
@sprout
 

Ahh, I don't have real ms as I can walk! Others to on about how difficult their lives would be if they couldn't drive. My mother said I got it because I don't eat meat!!!! My one brother thought it was good as it would upset our father. My neighbour leaves me clean up the mess his gardener leaves in our shared lane as he is more disabled with self inflicted obesity. And I get profiled in shops as a visually impaired woman peering closely at the goods. You will also get shunned by so called friends as they won't want a disabled friend. I found the ms therapy centre good as everybody gets you. It really is a case of leaving the negative people behind and making new friends who are positive influences.

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